Congenital Myasthenic Syndromes patient organisations

Myasthenic Kids Myasthenic Kids

United Kingdom

Myasthenic Kids was founded in 2009 by eight families from across the UK.

Congenital Myasthenia, a genetic condition that manifests at birth or in early childhood, is even rarer still (one or two in a million). Consequently there are very few myasthenic children in the UK.

Membership of Myasthenic Kids is free and not dependent on being a member of the Myasthenia Gravis Association (MGA), however they recommend parents to consider joining the MGA and its National Children's Branch in order to benefit from the MGA supported Children's Weekends and other funded activities.

MyasthenicKids runs the MGA Children’s Weekend annually please contact info@myasthenickids.org for exact dates, times and how to attend.

More Info
Email
Website www.myasthenickids.org

 
 
12 Apr 2017