The Project Ethics Council (PEC) - Introduction
The Project Ethics Council identifies and examines ethical and social aspects of research taking place in the context of TREAT-NMD. Please read more about our aims, members and work on the following pages.
Mission Statement
The PEC is a voluntary multidisciplinary group comprised of clinicians, scientists, parents, ethicists and legal academics, patients and representatives of parent organisations. The PEC will work in a collegiate, collaborative and inclusive manner to provide ethical guidance and balanced opinion in order to enhance the excellence TREAT-NMD aspires to.
Membership
Membership of the PEC is voluntary and drawn from the TREAT-NMD partner network, interest groups and invited external members. Members with special expertise, patient representatives, and other relevant groups may be co-opted as necessary.
Current PEC Members
Chair: Simon Woods (Newcastle University)
Denmark
Jes Rahbek (Institut for Muskelsvind = Institute of Neuromuscular Diseases)
France
Marie-Christine Ouillade (Association Française contre les Myopathies = French Muscular Dystrophy Association)
Françoise Rouault (Association Française contre les Myopathies = French Muscular Dystrophy Association)Germany
Janbernd Kirschner (Universitätsklinikum Freiburg = University Hospital Freiburg)
Christoph Rehmann-Sutter (University of Lubeck)
Hungary
Agnes Herczegfalvi (Országos Környezetegészségügyi Intézet = National Institute of Environmental Health)
Italy
Alessandra Ferlini (Universita degli Studi di Ferrara = Ferrara University)
Sweden
Thomas Sejersen (Karolinska Institutet)
The Netherlands
Annemieke Aartsma-Rus (Leids Universitair Medisch Centrum = Leiden University Medical Centre)
Elizabeth Vroom (United Parent Projects Muscular Dystrophy)
United Kingdom
Lynn Hagger (University of Sheffield)
Emma Heslop (Newcastle University)
Francesco Muntoni (University College London)
Pauline McCormack (Newcastle University)
