Meetings & Events

Meetings & Events

The Biennial FSHD International Patient and Researcher Network Meeting

30 Jul 2010 - 01 Aug 2010

The FSH Society is a world leader in combating muscular dystrophy.  It increases awareness and understanding and conducts research and education on the most prevalent muscular dystrophy in adults, called facioscapulohumeral muscular dystrophy (FSHD).

The FSH Society has brought together more than 4,000 FSHD-affected families through education, patient network meetings, support group meetings, peer-support, and advocacy.  Through the Society patients have found ways to be useful to medical and clinical researchers working on their disease.  The support patients receive from one another through sharing their common experience is invaluable and immeasurable.  One major way the Society fosters communication is with its biennial patient-researcher conference.

The 2010 International Patient and Researcher Network Meeting will be held at the Paris and Bally’s Hotels in Las Vegas, Nevada. These hotels have been selected for their accessibility, their convenient location, and good value. They are a part of the same complex and share meeting space.

Further information, full program and registration about can be found here.

 


TREAT-NMD Coordination Office: T: +44 191 241 8605 Fax: +44 191 241 8770 E:
FP6 Logo TREAT-NMD is supported through Priority 1 (Life Sciences, Genomics and Biotechnology for Health) of the European Union’s FP6 under contract number LSHM-CT-2006-036825 EU flag