Glossary
Our glossary below represents the most common acronyms and abbreviations used within the TREAT-NMD network. Periodically we will update this page with any more we encounter.
If you would like an entry to be included in this list please contact
| A B C D E F G H I J K L M N O P Q R S T U V W X Y Z | |
| A | |
| ACIES | A French SME specialised in Research Promotion and Management Consulting |
| AD | Action Duchenne (UK) |
| AFM | Association Française contre les Myopathies (France) |
| AON | Antisense Oligonucleotides |
| AOs | Antisense Oligonucleotides |
| B | |
| BMBF | Bundesministerin für Bildung und Forschung (German Federal Ministry of Education and Research) |
| BMD | Becker Muscular Dystrophy |
| C | |
| CDA | Confidential Disclosure Agreement |
| CINRG | Cooperative International Neuromuscular Research Group |
| CMD | Congenital Muscular Dystrophy |
| CoE | Centre of Excellence |
| CoI | Club of Interest |
| CRO | Clinical Research Organisation |
| CSO | Chief Scientific Officer |
| CTCC | Clinical Trials Co-ordination Centre |
| CTSR | Clinical Trial Site Registry |
| D | |
| DFSG | Duchenne Family Support Group |
| DHEA | Dehydroepiandrosterone |
| DM1 | Myotonic Dystrophy 1 |
| DMD | Duchenne Muscular Dystrophy |
| DoW | Description of Work |
| E | |
| EAMDA | European Alliance of neuroMuscular Disorders Associations |
| EBB | EuroBioBank |
| EC | Ethics Council |
| EFGCP | European Forum for Good Clinical Practice |
| EMEA | European Medicines Agency |
| ENMC | European NeuroMuscular Centre |
| ESHG | European Society of Human Genetics |
| EURORDIS | European Organisation for Rare Diseases |
| F | |
| FDA | Food and Drug Administration |
| FSHD | Facioscapulohumeral Muscular Dystrophy |
| FSMA | Families of SMA |
| FTELE | Fondazione Telethon |
| G | |
| GB | Governing Board |
| I | |
| ICC | International Coordinating Committee (SMA) |
| ICH | International Conference on Harmonisation |
| ILC | Industrial Liaison Council |
| IMT | Integrative Management Team |
| INSERM | Institut National de Santé et de la recherche médicale |
| IP | Integrated Project |
| IPUDC | Intellectual Property Use and Dissemination Committee |
| J | |
| JPA | Joint Program of Activities |
| JPI | Joint Program of Integration |
| JPR | Joint Program of Research |
| JPSE | Joint Program of Spreading Excellence |
| K | |
| KI | Karolinska Institute |
| L | |
| LGMD | Limb Girdle Muscular Dystrophy |
| LUMC | Leids Universitair Medisch Centrum (Leiden University medical Centre) |
| M | |
| MD | Muscular Dystrophy |
| MDA | Muscular Dystrophy Association |
| MDC | Muscular Dystrophy Campaign |
| MDEX | A consortium of exon skipping researchers in the UK |
| MD-NET | German Muscular Dystrophy Network |
| MFM | Motor Function Measure |
| MHRA | Medicines and Healthcare products Regulatory Agency |
| MRC | Medical Research Council |
| MRI | Magnetic Resonance Imaging |
| N | |
| NC | Network Coordinator |
| NIEH | Fodor Jozsef National Institute of Environmental Health (Hungary) |
| NIH | National Institutes of Health (USA) |
| NMD | Neuromuscular Diseases |
| NoE | Network of Excellence |
| O | |
| OC | Oversight committee |
| OM | Outcome Measures |
| P | |
| PAR | Periodic Activity Report |
| PEALS | Policy, Ethics and Life Sciences Research Centre |
| PEC | Project Ethics council |
| PFM | Project Finance Manager |
| PI | Principal Investigator |
| PPMD | Parent Project Muscular Dystrophy |
| Q | |
| QA / QC | Quality Assurance / Quality Control |
| R | |
| ROM | Registry of Outcome Measures |
| S | |
| SBMA | Spinal and Bulbar Muscular Atrophy |
| SC | Sub Committee |
| SMA | Spinal Muscular Atrophy |
| SME | Small to Medium Enterprise |
| SMN | Survival Motor Neuron gene |
| SNT | Santhera Pharmaceuticals |
| SOP | Standard Operating Procedures |
| STAC | Science and Technology Advisory Council |
| STREP | Specific Targeted Research Project |
| T | |
| TACT | TREAT-NMD Advisory Committee for Therapeutics |
| TGDOC | TREAT-NMD Global Database Oversight Committee |
| TNCC | TREAT-NMD Coordination Centre |
| TREAT-NMD | Translational Research in Europe – Assessment & Treatment of Neuromuscular Diseases |
| U | |
| UAB | Universitat Autonoma de Barcelona |
| UCL | Université Catholique de Louvain |
| UCLON | University College London |
| UNEW | University of Newcastle |
| UNIFE | Neuromuscular & Molecular-Genetic Unit of the University of Ferrara |
| UPPMD | United Parent Projects Muscular Dystrophy |
| V | |
| VC | Venture Capital |
| W | |
| WMS | World Muscle Society |
