TREAT-NMD members
We are delighted to count the organisations and individuals listed below as TREAT-NMD members. Members benefit from closer ties with the network and special access to the tools and resources the network is creating worldwide, and we are working together with our members to help implement the network’s goals, from improved patient care to specialist scientific training, in members' countries worldwide.
If you are interested in becoming a member, click here.
Country |
Name |
Organisation |
| Algeria | Bouras Abdelkader | Association Shifa des Maladies NeuroMusculaires - ASMNM |
| Argentina | Alberto Dubrovsky | Association Muscular Dystrophy |
| Favaloro Foundation | ||
| Soledad Monges | Hospital Pediatria J.P. Garrahan | |
| Armenia | Ara Arabyan | Individual Membership |
| Australia | Frank Mastaglia | Australian Neuromuscular Research Institute |
| Gayle Smythe | Charles Stuart University | |
| Alastair Corbett | Concord Repatriation General Hospital | |
| Peter Houweling | Institute for Neuroscience and Muscle Research | |
| Zoe Davidson | Monash University | |
| Michelle Farrar | Sydney Children's Hospital | |
| Kathy North | University of Sydney | |
| Joshua Burns | University of Sydney | |
| Sue Fletcher | University of Western Australia | |
| Steve Wilton | University of Western Australia | |
| Miranda Grounds | University of Western Australia | |
| Belgium | Vlaamse vereniging neuromusculaire aandoeningen - Nema vzw | |
| Bulgaria | Ivailo Ljudmilov Tournev | Bulgarian NMD Society |
| Canada | Doug Biggar | Bloorview Kids Rehab |
| Kathryn Selby | British Columbia's Children's Hospital | |
| Lawrence Korngut | Canadian Neuromuscular Disease Registry - CNDR | |
| Craig Campbell | London Health Sciences Centre | |
| Jean-Pierre Bouchard | Universite Laval | |
| Czech Republic | Zdenek Janda | Asociace Muskularnich Dystrofiku v CR |
| Jana Haberlova | Charles University | |
| Helena Kocová | Kolpingova rodina Smečno | |
| Miroslav Stuchlik | Parent Project | |
| Stanislav Voháňka | University Hospital Brno | |
| Petr Vondráček | University Hospital Brno | |
| Denmark | John Vissing | University of Copenhagen |
| Egypt | Sahar Hassanein | Ain Shams University |
| Finland | Bjarne Udd | University of Tampere |
| France | Xavier Ferrer | Centre de Reference des Maladies Neuromusculaires du Grand Sud-Ouest |
| Guilhem Sole | Centre de Reference des Maladies Neuromusculaires du Grand Sud-Ouest | |
| Claude Desnuelle | NICE University Medical Center | |
| Sabrina Sacconi | NICE University Medical Center | |
| Germany | Inge Schwersenz | Initiative - Forschung und Therapie fuer SMA Deutsche Gesellschaft fuer Muskelkranke (DGM) |
| Elke Holinski-Feder | Medical Genetics Center | |
| Michael Kolodzig | SMA Deutschland | |
| Joachim Schessl | University of Munich | |
| Hans-Jurgen Gdynia | University of Ulm | |
| Anne-Dorte Sperfeld | University of Ulm | |
| Greece | Dimitris Emmanouil | Individual Membership - Greece |
| Panagiota Manta | Medical School of Athens | |
| George-Konstantinos Papadimas | University of Athens | |
| Constantinos Papadoppulos | University of Athens | |
| Konstantinos Spengos | University of Athens | |
| Hungary | Peter Mayer | Elizabeth Hospital Neurology |
| I.R. of Iran | Shahriar Nafissi | Tehran University of Medical Sciences |
| India | Sanjana Goyal | Indian Association of Muscular Dystrophy |
| R Dhanarajan | Individual Membership | |
| Muscular Dystrophy Foundation India | ||
| Arthi Chandramohan | Sundaram Medical Foundation | |
| Krishnasree T Dwarakanth | Sundaram Medical Foundation | |
| B.R. Lakshmi | Sundaram Medical Foundation | |
| Sakthivel Murugan S.M. | Sundaram Medical Foundation | |
| Ireland | Mary Mooney | Duchenne Ireland |
| Jimmy Mooney | Duchenne Ireland | |
| John Gorman | Duchenne Ireland | |
| Janet Bailie | Individual Membership | |
| Julio Perez | Individual Membership | |
| Karen Pickering | Muscular Dystrophy Ireland - MDI | |
| Emma Louise Ryan | National Centre for Genetics | |
| Italy | Marzia Camisasca | Individual Membership |
| Maria Pasanisi | Individual Membership | |
| Maria Grazia D'Angelo | IRCCS E. Medea - La Nostra Famiglia | |
| Michelangelo Mancuso | Neurological Clinics - University of Pisa | |
| Filippo Buccella | Parent Project - Genitori contro la Distrofia Musculare di Duchenne & Becker ONLUS Italy | |
| Massimiliano Filosto | University Hospital "Spedali Civili" | |
| Diana Conte Camerino | University of Bari | |
| Annamaria De Luca | University of Bari | |
| Corrado Angelini | University of Padova | |
| Gabriele Siciliano | University of Pisa | |
| Latvia | Baiba Lace | Medical Genetics Clinic, Childrens Hospital |
| Andris Zaicevs | Motus Vita: Association of People with Special Needs | |
| Lithuania | Laura Vilkiniene | Individual Membership |
| Lithuanian association of patients with genetic neuromuscular diseases - Sraunija | ||
| Mexico | Rosa Elena Escobar Cedillo | Sociedad Mexicana De La Distrofia Muscular A.C. |
| Guadalupe Franco | UPA! cura Duchenne | |
| Netherlands | Tita Ritsema | Amsterdam Molecular Therapeutics |
| Robert Pangalila | Rijndam Rehabilitation Clinic | |
| Ellen Sterrenburg | Stichting ISNO | |
| New Zealand | Bridget McKeown | Individual Membership |
| Muscular Dystrophy Association of New Zealand | ||
| Poland | Konrad Chawrylo | Individual Membership |
| Anna Kaminska | Medical University of Warsaw | |
| Marta Banach | Psychiatry and Neurology Institute | |
| Portugal | Rosario dos Santos | National Insitute of Public Health |
| Reunion Islands | Claude Mignard | Centre Hospitalier Regional de la Reunion |
| Romania | Asociatia Werdnig Hoffman | |
| Ligia Barbarii | Genetics Laboratory - National Institute of Legal Medicine | |
| Isabela Tudorache | Parent Project Association | |
| Gisela Gaina | University of Bucharest | |
| Maria Puiu | University of Medicine and Pharmacy | |
| Amelia Mihaela Dobrescu | University of Medicine and Pharmacy of Craiova | |
| Russia | Dmitry Rudenko | City Hospital No 2 |
| Tima Stuchevskaya | City Hospital No 2 | |
| Russian Muscular Dystrophy Association | ||
| Serbia | Branko Jokic | Association of Persons with Disabilities Serbia |
| Vladimir Czmar | Individual Membership | |
| Kojic Snezana | Institute of Molecular Genetic and Genetic Engineering | |
| Vidosava Stojanovic | University Clinical Center of Belgrade | |
| Vedrana Milic-Rasic | University of Belgrade | |
| Slovenia | Boris Sustarsic | Drustvo distrofikov Slovenije |
| Spain | Maria Ramos Miranda | ASEM Catalunya |
| Elisa Perez Rodriquez | ASEM Comunidad Valencia | |
| Rocio Sanchez-Carpintero | Clinic Universidad De Navarra | |
| Ana Camacho | Hospital 12 De Octubre | |
| Lucia Galan Davila | Hospital Clinico San Carlos | |
| Marcos Madrga Garrido | Virgen Del Rocio University Hospital | |
| Sweden | Lena Bjarbo | Individual Membership |
| Switzerland | Virginia Spehrs-Ciaffi | CHUV |
| Pierre-Yves Jeannet | CHUV | |
| Robert Palm | Progena Foundation | |
| Andrea Klein | University Children's Hospital | |
| Dirk Fischer | University Hospital Basel | |
| Daniel Schumperli | University of Bern | |
| Turkey | Coskun Ozdemir | Association of NMD |
| Beril Talim | Hacettepe University | |
| A. Ayse Karaduman | Hacettepe University | |
| Haluk Topaloğlu | Hacettepe University | |
| Mete Sandalci | Individual Membership | |
| Piraye Oflazer Serdaroglu | Istanbul University | |
| Serap İnal | Istanbul University | |
| Fulya Ogretir | SMA Grubu | |
| Ukraine | Petro Voloshyn | Academy of Medical Science |
| Vitaliy Matyushenko | Children with SMA | |
| United Kingdom | Alison Shillington | Alderhey Hospital |
| Tamara Markovic-Aksoy | Individual Membership | |
| TP Nandakumar | Individual Membership | |
| Amir Sheikh | Individual Membership | |
| Hinal Patel | Institute of Child Health | |
| Richard Green | Jennifer Trust for SMA | |
| Michael Miller | Martin House Hospice | |
| Lyn Inman | Muscular Dystrophy Campaign | |
| Marita Pohlschmidt | Muscular Dystrophy Campaign | |
| Kristina Mills | Muscular Dystrophy Campaign | |
| Margaret Bowler | Myotonic Dystrophy Support Group | |
| Anne Lennox | Myotubular Trust | |
| Wendy Hughes | Myotubular Trust | |
| Jennie Shine | NHS Specialised Commissioning Group | |
| Karen Elder | SMA Trust | |
| Casimir Knight | SMA Trust | |
| Gita Ramdharry | St George's School of Physiotherapy | |
| Darren Monckton | University of Glasgow | |
| Lynn Hagger | University of Sheffield | |
| Steve Winder | University of Sheffield | |
| United States of America | Michele Yang | Children's Hospital Denver |
| Terence Partridge | Children's National Medical Center | |
| Arpana Sali | Children's National Medical Center | |
| Avital Cnaan | Children's National Medical Center | |
| Ed Connor | Children's National Medical Center | |
| Kanneboyina (Raju) Nagaraju | Children's National Medical Center | |
| Christopher Spurney | Children's National Medical Center | |
| Tina Duong | CINRG | |
| Eric Hoffman | CINRG | |
| Lauren Hache | CINRG | |
| Patrick May | Cure CMD | |
| Anne Rutkowski | Cure CMD | |
| Susan Sklaroff Van Hook | Cure CMD | |
| Diane Smith-Hoban | Cure CMD | |
| DuchenneConnect | ||
| Kristen Cox | Individual Membership | |
| Lisa Harvey | Myotonic Dystrophy Foundation | |
| Perry Shieh | UCLA | |
| Tahseen Mozaffar | University of California, Irvine | |
| Payam Soltanzadeh | University of Utah | |
| Kathy Swoboda | University of Utah | |
| Chad Markert | Wake Forest University | |
| Julaine Florence | Washington University in St Louis |
21 Jun 2011
