TREAT-NMD members
We are delighted to count the organisations and individuals listed below as TREAT-NMD members. Members benefit from closer ties with the network and special access to the tools and resources the network is creating worldwide, and we are working together with our members to help implement the network’s goals, from improved patient care to specialist scientific training, in members' countries worldwide.
If you are interested in becoming a member, click here.
TREAT-NMD members
Country |
Name |
Organisation |
| Algeria | Bouras Abdelkader | Association Shifa des Maladies NeuroMusculaires (ASMNM) |
| Argentina | Alberto Dubrovsky | Association Muscular Dystrophy |
| Favaloro Foundation | ||
| Soledad Monges | Hospital Pediatria J.P. Garrahan | |
| Armenia | Ara Arabyan | Individual membership |
| Australia |
Joshua Burns
|
|
| Alastair Corbett | Concord Hospital | |
| Zoe Davidson | Monash University | |
| Sue Fletcher | University of Western Australia | |
| Frank Mastaglia | Australian Neuromuscular Research Institute | |
| Deborah Robins | Parent Project | |
| Gayle Smythe | Charles Stuart University | |
| Steve Wilton | University of Western Australia | |
| Belgium | Patrik Claes | Nema vzw |
| Bulgaria | Ivailo Ljudmilov Tournev | Bulgarian NMD Society |
| Canada | Doug Biggar | Bloorview Kids Rehab |
|
Jean-Pierre Bouchard
|
||
| Craig Campbell | CPNG | |
| Lawrence Korngut | Canadian Neuromuscular Disease Registry (CNDR) | |
| Kathryn Selby | British Columbia's Children's Hospital | |
| Czech Republic |
Jana Haberlova |
|
|
Zdenek Janda
|
||
| Helena Kocova | Kolpingova rodina Smecno | |
| Miroslav Stuchlik | Parent Project | |
| Petr Vondracek | Univeristy Hospital Brno | |
| Denmark | John Vissing | University of Copenhagen |
| Finland | Bjarne Udd | University of Tampere |
| France |
Claude Desnuelle
|
NICE University Medical Center
|
| Xavier Ferrer | Centre de reference des maladies neuromusculaires du Grand Sud-Ouest | |
| Sabrina Sacconi |
NICE University Medical Center
|
|
| Guilhem Sole | Centre de reference des maladies neuromusculaires du Grand Sud-Ouest | |
| Germany |
Hans-Jurgen Gdynia
|
|
| Elke Holinski-Feder | Medical Genetics Center | |
| Michael Kolodzig | SMA Deutschland | |
| Joachim Schessl | University of Munich | |
| Guenter Scheuerbrandt | Individual membership | |
| Inge Schwersenz | Inititive "Forschung und Therapie fuer SMA" | |
| Anne-Dorte Sperfeld | University of Ulm | |
| Greece | Dimitris Emmanouil | Individual Membership |
| Panagiota Manta | Medical School of Athens | |
| George-Konstantinos Papadimas | University of Athens | |
| Constantinos Papadoppulos | University of Athens | |
| Konstantinos Spengos | University of Athens | |
| Hungary | Peter Mayer | Elizabeth Hospital Neurology |
| India |
Arthi Chandramohan
|
|
| R Dhanarajan | Individual membership | |
| Krishnasree T. Dwarakanth | Sundaram Medical Foundation | |
| Sanjana Goyal | Indian Association of Muscular Dystrophy | |
| B.R. Lakshmi | Sundaram Medical Foundation | |
| Sakthivel Murugan S.M. | Sundaram Medical Foundation | |
| Iran | Shahriar Nafissi | Tehran University of Medical Sciences |
| Ireland |
Janet Bailie
|
Individual membership
|
|
Mary Mooney
|
||
| Julio Perez | Individual membership | |
| Karen Pickering | Muscular Dystrophy Ireland | |
| Emma Louise Ryan | National Centre for Genetics | |
| Italy |
Corrado Angelini
|
|
| Filippo Buccella | Parent Project onlus | |
| Diana Conte Camerino | University of Bari | |
| Maria Grazia D'Angelo | RCCS E. Medea - La Nostra Famiglia | |
| Annamaria De Luca | University of Bari | |
| Michelangelo Mancuso | Neurological Clinics- University of Pisa | |
| Gabriele Siciliano | University of Pisa | |
| Latvia | Baiba Lace | Medical Genetics Clinic, Childrens Hospital |
| Andris Zaicevs | Association of people with Special Needs "Motus Vita" | |
| Lithuania | Laura Vilkiniene | Individual membership |
| Mexico | Rosa Elena Escobar Cedillo | Sociedad mexicana De La Distrogia Muscular A.C. |
| Guadalupe Franco | UPA! cura Duchenne | |
| Netherlands |
Tita Ritsema
|
|
| Ellen Sterrenburg | Stichting ISNO | |
| New Zealand |
Rodger Alexander
|
|
| Bridget McKeown | Individual membership | |
| Robert Pangalila | Rijndam Rehabilitation Clinic | |
| Poland | Marta Banach | Psychiatry and Neurology Institute |
|
Konrad Chawrylo
|
Individual membership
|
|
| Anna Kaminska | Medical University of Warsaw | |
| Portugal | Rosario dos Santos | National Insitute of Public Health |
| Reunion Islands | Claude Mignard | Centre Hospitalier Regional de la Reunion |
| Romania |
Ligia Barbaraii
|
|
| Amelia Mihaela Dobrescu | University of Medicine and Pharmacy of Craiova | |
| Gisela Gaina | University of Bucharest | |
| Maria Puiu | University of Medicine and Pharmacy "Victor Babes", Timisora | |
| Veres Robert | Werdnig Hoffman Association | |
| Isabela Tudorache | Parent Project Association | |
| Russia |
Svetlana Artemyeva
|
Russian Muscular Dystrophy Association "Nadezhda"
|
| Evgeny Gerasimov |
Russian Muscular Dystrophy Association "Nadezhda"
|
|
| Dmitry Rudenko | City Hospital No 2 | |
| Tima Stuchevskay | City Hospital No 2 | |
| Serbia | Vladimir Czmar | Individual Membership |
|
Branko Jokic
|
Association of Persons with Disabilities Serbia
|
|
|
Vedrana Milic-Rasic
|
||
| Kojic Snezana | Institute of Molecular Genetic and Genetic Engineering | |
| Vidosava Stojanovic | University Clinical Center of Belgrade | |
| Slovenia | Boris Sustarsic | MDA of Slovenia |
| Spain | Ana Camacho | Hospital 12 De Octubre |
|
Lucia Galan Davila
|
||
| Marcos Madrga Garrido | Virgen Del Rocio University Hospital | |
| Maria Ramos Miranda | ASEM Catalunya | |
| Elisa Perez Rodriquez | ASEM Comunidad Valencia | |
| Rocio Sanchez-Carpintero | Clinic Universidad De Navarra | |
| Switzerland |
Dirk Fischer
|
|
| Andrea Klein | University Children's Hospital | |
| Robert Palm | Progena Foundation | |
| Daniel Schumperli | University of Bern | |
| Virginia Spehrs-Ciaffi | CHUV | |
| Turkey |
Fulya Ogretir
|
|
| Coskun Ozdemir | Association of NMD | |
| Mete Sandalci | Individual membership | |
| Piraye Oflazer Serdaroglu | Istanbul University | |
| Haluk Topaloglu/Beril Talim | Hacettepe University | |
| UK |
Margaret Bowler
|
|
| Karen Elder | SMA Trust | |
| Richard Green | Jennifer Trust for SMA | |
| Lyn Inman | Muscular Dystrophy Campaign | |
| Casimir Knight | SMA Trust | |
| Tamara Markovic-Aksoy | Individual membership | |
| Michael Miller | Martin House Hospice | |
| Darren Monckton | University of Glasgow | |
| TP Nandakumar | Individual membership | |
| Gita Ramdharry | St George's School of Physiotherapy | |
| Amir Sheikh | Individual membership | |
| Alison Shillington | Alderhey Hospital | |
| Jennie Shine | NHS Specialised Commissioning Group | |
| Steve Winder | University of Sheffield | |
| Ukraine |
Vitaliy Matyushenko
|
|
| Petro Voloshyn | Academy of Medical Science | |
| USA |
Kristen Cox
|
Individual membership
|
| Tina Duong | CINRG | |
| Kevin Flanigan | University of Utah | |
| Julaine Florence | Washington University in St Louis | |
| Shannon Lord | Myotonic Dystrophy Foundation | |
| Chad Markert | Wake Forest University | |
| Patrick May | Cure CMD | |
| Tahseen Mozaffar | University of California, Irvine | |
| Terence Partridge | Children's National Medical Center | |
| Vanessa Rangel Miller | DuchenneConnect | |
| Arpana Sali | Children's National Medical Center | |
| Perry Shieh | UCLA | |
| Payam Soltanzadeh | University of Utah | |
| Michele Yang | Children's Hospital Denver |
