TREAT-NMD Alliance Members
Organizations

 

Algeria

Association Shifa des Maladies NeuroMusculaires(ASMNM)


Argentina

Asociación Civil Familias Atrofia Muscular Espinal (AME) Argentina


Australia

Australasian Neuromuscular Network
Office of Population Health Genomics
(Western Australia)
Rare Voices Australia
Save Our Sons
Sydney Children's Hospital
The Royal Children's Hospital


Austria

Marathon - Verein von Eltern und Angehörigen gegen
Muskelerkrankungen bei Kindern


Belgium

Duchenne Parent Project Belgium


Brazil

Faculdade de medicina ABC


Bulgaria

Bulgarian Neuromuscular Diseases Association - BNMDA
Bulgarian NMD society


Canada

Canadian Neuromuscular Disease Registry (CNDR)
Canadian Pediatric Neuromuscular Group


Chile

Corporacion Familias Atrofia Muscular Espinal, FAME Chile


China

Children Hospital of Fudan University
China DMD care and Support Association
General Hospital of Chinese Armed Police Forces
Meier Advocacy and Support Center for SMA
Shenzhen Muscular Dystrophy Baby Care Center


Colombia

Fundación Atrofia Muscular Espinal Colombia Sara y Sofia


Croatia

Referral Center for Pediatric Neuromuscular disorders of Croatian Ministery of Health, Department of Pediatrics, Clinical Medical Centre Zagreb University of Zagreb Medical School and Croatian Society for Child Neurology


Cyprus

Cyprus Institute of Neurology and Genetics


Czech Republic

End Duchenne
Parent Project


Denmark

Pediatric Neurology
RehabiliteringsCenter for Muskelsvind  RCfM


Egypt

Muscle and Nerve Research Laboratory, Neurology Department,
Ain Shams University
Pediatric neurology unit, Children's Hospital


Finland

Finnish TREAT-NMD Patient Registry
Neuromuscular Research Center, University of Tampere


France

AFM-Téléthon
CYTOO
gmp-orphan


Germany

Aktion Benni & co e.V.
Deutsche Gesellschaft für Muskelkranke e.V.  DGM
Deutsche Muskelstiftung
Children´s University Hospital, Dept. of Neuropediatrics, Neuromuscular Center
MD-NET - German Network for hereditary neuromuscular diseases
MGZ - Medizinisch Genetisches Zentrum
ZNM - Zusammen Stark!


Greece

Greek Association of myopathy awareness Duchenne / Becker
Muscular Dystrophy Association Hellas


Hungary

Misko Foundation
National Institute of Environmental Health


Iceland

FSMA á Íslandi - Families of SMA in Iceland


India

Dystrophy Annihilation Research Trust
Indian Muscular Dystrophy Society
Muscular Dystrophy Foundation India
Molecular Diagnostics, Counseling, Care & Research Centre
SAMSKARA


Ireland

Duchenne Ireland
Join Our Boys Duchenne Research Foundation
Muscular Dystrophy Ireland


Israel

Little Steps


Italy

Fondazione Telethon Italy
GFB Family Group of Beta-sarcoglycanopathy
IRCCS  S. Camillo Hospital,Venice
Parent Project Onlus

Unione Italiana Lotta alla Distrofia Muscolare (UILDM)


Japan

Japan Muscular Dystrophy Association, Corp.
Neuromuscular Reasearch Department, National Center Of Neurology
Patients Association for Distal Myopathies (PADM)
Remudy, National Center of Neurology and Psychiatry, Japan


Kuwait

Kuwait Medical Genetic Center/KMGC


Lithuania

Lithuanian association for patients with genetic neuromuscular diseases "Sraunija"


Lebanon

Lebanese Association for Neuromuscular Diseases


Moldova

Institute of Mother and Child Health Care


Mexico

Asociación Mexicana de Atrofia Muscular Espinal
Fundacióon Mexicana de Enfermedades Genéticas y Médicina Genómica A.C.
Sociedad Mexicana de la Distrofia Muscular A.C.


Nepal

Muscular Dystrophy Organization Nepal


Netherlands

Duchenne Parent Project
European NeuroMuscular Centre (ENMC)
FSHD Europe
FSHD Stichting


New Zealand

Muscular Dystrophy Association (New Zealand)
NZ NMD Registry


Norway

Center for Inborn and Hereditary Muscular Disorders
National Neuromuscular Centre, Norway (NMK)
Neuromuscular Assosiation Norway (FFM)


Pakistan

Muscular dystrophy Registry of Pakistan


Poland

Fundacja SMA


Portugal

APN - Associação Portuguesa de Doentes Neuromusculare
Hospital Dona Estefânia- Centro Hospitalar De Lisboa Central


Romania

Asociatia Parent Project Romania
University of Bucharest/Department of Biochemistry and Molecular Biology


Russia

Russian Muscular Dystrophy Association

Saudi Arabia

King Faisal Specialist Hospital and Research Center


Serbia and Montenegro

Clinic for Neurology and Psychiatry for Children and Youth


Slovakia

Organization of Muscular Dystrophy in the Slovak republic


Spain

Association Conquistando Escalones
Donostia University Hospital
Duchenne Parent Project Spain
FUNDAME - Fundacion Atrofia Muscular Espinal
Fundación Andrés Marcio Niños contra la Laminopatía


Sweden

insamlingsStiftelsen för MuskelDystrofiForskning, SMDF
Nätverket för spinal muskelatrofi
Neuromuscular Center


Switzerland

Swiss Foundation for Research on Muscle Diseases


Turkey

Hacettepe University
SMA GRUBU


Ukraine

Children with SMA - Foundation
State Institution"Institute of Neurology, Psychiatry and Narcology of NAMS of Ukraine"


United Kingdom

Action Duchenne
Alex's Wish
Duchenne Alliance
Duchenne Children's Trust
Duchenne Family Support Group
DUCHENNE NOW
Genetic Alliance UK
Harrison's Fund
Joining Jack
Myotonic Dystrophy Support group
Myotubular Trust
Spinal Muscular Atrophy Support UK


United States

Ariadne Diagnostics LLC
BioBlast Pharma Ltd
Coalition to Cure Calpain 3
Cooperative International Neuromuscular Research Group (CINRG)
CureDuchenne
Duchenne Alliance
Fulcrum Therapeutics
gne-myopathy.org
Hereditary Neuropathy Foundation
Hope for Gus Foundation
Myotonic Dystrophy Foundation
Phrixus Pharmaceuticals, Inc.
PhaseBio Pharmaceuticals Inc.
PTC Therapeutics
SUNY-Downstate Medical Center
Tonus Therapeutics
Two Smiles One Hope Foundation
University of Minnesota-Paul and Sheila Wellstone Muscular Dystrophy Center


Vietnam

DMD Vietnam club
 
03 May 2017