News
Myology training in Russia
1st Russian Spring School of Myology initiates specialist training for Russian health professionals From 17-20 May 2010 more than 60 Russian... MORE >
SMA Europe call for research projects
SMA Europe has announced its third international Call for SMA Research Projects, following the successful Calls in 2008 and... MORE >
Gene chips for diagnosis of NMDs - an update from the NMD-chip project
NMD-chip (www.nmd-chip.eu) is a scientific project funded by the European Union. Its aim is to design, develop and validate new... MORE >
Neuromuscular stakeholders to meet with FDA and NIH on AON therapies in September
We are pleased to announce the upcoming FDA and NIH co-sponsored meeting titled Antisense Oligonucleotide (AON) Therapies in Neuromuscular Diseases,... MORE >
Networking neuromuscular research and care in Brazil: conference report
From 17-19 June 2010 a group of international neuromuscular specialists joined Brazilian healthcare professionals and patient groups at the Hospital... MORE >
Clinical Outcome Measures in DMD - Meeting Summary
On June 28 and 29, 25 participants from Europe and the US met in Washington DC to discuss Clinical Outcome... MORE >
TACT second review meeting
The TREAT-NMD Advisory Committee for Therapeutics (TACT) held its second review meeting on the 5th – 6th June 2010, which... MORE >
ENMC is accepting applications for workshops in 2011
The European Neuromuscular Centre (ENMC) aims to encourage and facilitate collaborative research into neuromuscular diseases (NMD). In order to foster... MORE >
Best practice guidelines for molecular testing published in Neuromuscular Disorders
In view of recent developments in both molecular testing techniques and therapeutical approaches for DMD, the need to update the... MORE >
Clinical trial design workshop in Freiburg teaches the fundamentals of trial planning in rare NMDs
The TREAT-NMD Clinical Trial Coordination Centre has just hosted its second workshop on “clinical trials in neuromuscular disorders and other rare... MORE >
Families of SMA Conference approaches
The Annual Families of SMA Conference hosts the USA's largest gathering of those affected by SMA and leading researchers from... MORE >
BIO-NMD Six month project update
BIO-NMD is a collaboration of 12 European partners working together with the common aim of trying to identify possible biomarkers... MORE >
Language Lab: rethinking medical communication through art and metaphor
"If your DNA is like a recipe book, a mutation is like a typo that causes you to make the... MORE >
DMD guide for families now available for download
The consensus document The Diagnosis and management of Duchenne muscular dystrophy was published over two editions of the Lancet Neurology in... MORE >
US Children's hospital offers podcasts focusing on neuromuscular disorders
Scientists and clinicians at the Nationwide Children’s Hospital in Columbus, Ohio have launched a monthly podcast entitled, “This Month... MORE >
CARE-NMD project for DMD care standards gets underway
CARE-NMD project for Duchenne muscular dystrophy funded under the EU’s Second Programme of Community Action in the Field of Health... MORE >
Focus on Progena - Swiss foundation for children with DMD and other rare genetic diseases
As part of our series featuring TREAT-NMD members, this week we feature information about the Swiss organisation Progena. Progena was... MORE >
Acceleron Pharma has announced the initiation of a phase 2 clinical trial
Acceleron Pharma has announced the initiation of a phase 2 clinical trial of ACE-031, a novel therapy that promotes muscle... MORE >
Focus on UPA! Latin/Ibero-American Network
TREAT-NMD has close working relationships with patient groups across the world and in this news item, in the first of... MORE >
Patients’ and Patient Organisations’ Involvement in TREAT-NMD Workshop - Postponed
Patients’ and Patient Organisations’ Involvement in TREAT-NMD Workshop Due to the unforeseen travel disruption the organising committee of the Patient Voice... MORE >
Two day conference marks ten years of orphan drug regulation in the EU
On 3 and 4 May 2010 the European Medicines Agency held a two day conference to mark the 10th anniversary... MORE >
International consensus guidelines set out best-practice care for Duchenne muscular dystrophy
Click here to download full press release. A major international consensus document setting out best practice in care for Duchenne muscular... MORE >
International workshop - Preclinical testing in SMA 29-30th March 2010
One of the activities of TREAT-NMD is to harmonize experimental methods used to evaluate the efficacy of a test... MORE >
TACT Non Confidential Meeting Reports Available
In February TACT evaluated three proposals at its first review meeting. These included: Losartan – submitted by... MORE >
Update on the TREAT-NMD Global Patient Registries
Working with many patient organisations across the world, TREAT-NMD has helped to create national gene-specific patient registries with future clinical... MORE >
Introducing FOR-DMD (a trial of different corticosteroid regimens in Duchenne muscular dystrophy) and a call for patient partners
For many years a major obstacle to the standardisation of care in Duchenne Muscular Dystrophy (DMD) has been indecision about... MORE >
Call for expert trainers
As part of the training and education activity within TREAT-NMD, ENMC are wanting experienced clinicians, scientists and patient representatives who... MORE >
BIO-NMD biomarkers project launched at official kick-off meeting
The BIO-NMD EU project (FP7, HEALTH-2009-2.4.4-1: Rare neurological diseases) “Identifying and validating pre-clinical biomarkers for diagnostics and therapeutics of Neuromuscular... MORE >
SMA Europe announces grant recipients
SMA Europe is pleased to announce the award of about €650,000 for research into Spinal Muscular Atrophy – SMA, in... MORE >
TACT first review meeting
A multidisciplinary group of seventeen members of the international TREAT-NMD Advisory Committee for Therapeutics met in Rome on the 6th-7th... MORE >
TREAT-NMD/NIH conference establishes interaction as the basis for future progress
The TREAT-NMD/NIH International Conference is now successfully behind us, and we’d like to thank everyone who worked so hard to... MORE >
TREAT-NMD, EMEA and Patient Group Workshop on Antisense Oligonucleotide Therapies in DMD Signals Collaborative Approach to the Issues of Personalized Medicine
Download a PDF version of this press release here. On 25 September 2009 a broad group of 98 DMD experts assembled... MORE >
TREAT-NMD / Santhera Pharmaceuticals Press Release
TREAT-NMD announces that it has agreed to collaborate in providing professional physiotherapist training for Santhera Pharmaceutical’s pivotal Phase III study... MORE >
