Partners

Partners

TREAT-NMD brings together 21 partner organisations, including doctors, researchers, charities and pharmaceutical companies already working on neuromuscular diseases, based throughout 11 European countries:

ACIES

For further details please click here or contact:

Maud Seguy - Consultant European Research Projects

 
ACIES
69 rue de la République
69002 Lyon
FRANCE
T: 0033 4 78 92 40 00
F: 0033 4 78 92 40 01 
 

Association Française contre les Myopathies/Genethon/Institut de Myologie

For further details please click here or contact:
 
Françoise Rouault - International Scientific Affairs

AFM
1 rue de l'Internationale
BP 59
91002 EVRY Cedex
FRANCE
M: 33 675072651 
 

Biozentrum/University of Basel

For further details please click here or contact:
 
Markus A. Ruegg - Professor of Neurobiology


University of Basel
Klingelbergstrasse 70
CH-4056 Basel
SWITZERLAND
T: +41 61 267 22 23
F: +41 61 267 22 08 
 

European Neuromuscular Centre

For further details please click here or contact:
 
Annette Boersen - Research Manager

 
European Neuromuscular Centre
Lt.Gen. van Heutszlaan 6
3743 JN Baarn
THE NETHERLANDS
T: + 31 35 5480482
F: + 31 35 5480499  
 

European Organisation for Rare Diseases

For further details please click here or contact:
 
Fabrizia Bignami - Therapeutic Development Director

EURORDIS (European Organisation for Rare Diseases)
Plateforme Maladies Rares
102, rue Didot
75014 Paris
FRANCE
T: +33 (0) 1 56 53 52 12
F: +33 (0)1 56 53 52 15 


Fondazione Telethon

For further details please click here or contact:
 
Anna Ambrosini - Research Program Manager
 
Scientific Office
Fondazione Telethon
Via Nino Bixio 30
20129 Milano
Italy
T: +39 02.202217.214
F: +39 02.20240688
 
or

Eugenio Mercuri - Professor of Pediatric Neurology, Catholic University Rome

Neuopsichiatria Infantile
Policlinico Gemelli
Largo Gemelli
00168 Roma
ITALY
T: +39  06 30155586
 
or
 
Enrico Bertini - Neurologist
 
Unit of Molecular Medicine,
Dept. of Laboratory Medicine,
Ospedale Bambino
00165 Rome
ITALY
T: + 39 066 859 2105
F: + 39 066 859 2024

 
 

Genethon

For further details please click here or contact:

Marie-Odile Ott - Partnership Development Representative

GENETHON
1 bis rue de l'Internationale - BP60
F-91002 Evry Cedex
FRANCE
T: +33 1 69 47 11 64
F: +33 1 69 47 29 46

 
 

GenoSafe SAS

For further details please click here or contact:
 
Muriel Audit - Study Director
 

1 rue de l'internationale
BP 40064 91002 EVRY Cedex
FRANCE
T: 00 33 (0)1 69 47 11 57
F: 00 33 (0)1 69 47 11 61
 
or
 
Séverine Pouillot -Chargée de mission de suivi des projets collaboratifs
 
1 rue de l’Internationale
BP 40064 91002 Evry Cedex
FRANCE
T: 33(0)169474770
F: 33(0)169471161
 

 

Helsingin yliopisto

For further details please click here or contact:
 
Carina Wallgren-Pettersson - Consultant in Medical Genetics

Departments of Medical Genetics
University of Helsinki and Folkhälsan
P.O. Box 211
FI-00251 Helsinki
FINLAND
T: +358-9-315 5521
F: +358-9-315 5106 
 

Institut National de la Santé et de la Recherche Médicale

For further details please click here or contact:
 
Christophe Béroud - Assistant professor, Laboratoire de Génétique Moléculaire and INSERM U827
 
641
avenue du doyen Gaston GIRAUD
34093 MONTPELLIER
FRANCE
T: 33 (4) 67 41 53 81
 

Karolinska Institute

For further details please click here or contact:

Thomas Sejersen - Associate Professor, Astrid Lindgrens Barnsjukhus
 
Karolinska University Hospital
17176 STOCKHOLM
SWEDEN
T: +46 8 51777342
F: +46 8 51777349 
 

King's College London

For further details please click here or contact:
 
Michael Rose - Consultant Neurologist

Room 91.23
9th Floor
Ruskin Wing
King's College Hospital
Denmark Hill
London
SE5 9RS
T: 020 3299 8352
F: 020 3299 8504
 

Leiden University Medical Center

For further details please click here or contact:
  
Annemieke Aartsma-Rus - Assistant Professor, Leiden University Medical Center

Department of Human Genetics
DMD Genetic Therapy Group
Post-Zone S04-034
LUMC - Human Genetics
Postbus 9600
2300 RC Leiden
NETHERLANDS
T: +31 71 - 526 9436
F: +31 71 - 526 8285
 

Medical Research Council 

For further details please click here or contact:
 
Kay E Davies - Dr Lee's Professor of Anatomy; Honorary Director - MRC Functional Genetics Unit/ Associate Head - Department of Physiology Anatomy & Genetics

Le Gros Clark Building
South Parks Road
Oxford
OX1 3QX
UK
T: 01865 285880
F: 01865 285878
 

Muskeldystrophie-Netzwerk

For further details click here or contact:
 
Maggie Walter


Friedrich-Baur-Institut
Neurologische Klink und Poliklinik
Labor für Molekulare Myologie
Ludwig-Maximilians-Universität
Ziemssenstr. 1
D-80336 München
GERMANY
Tel.: +49.89.5160-7400 or +49.89.2180-78180
Fax: +49.89.5160-7402 or +49.89.2180-78184
 
Click here for the full MD-NET contact list.
 

National Institute of Environmental Health (NIEH)

For further details please click here or contact:

Veronika Karcagi - Head of Department of Molecular Genetics and Diagnostics 
 
National Institute of Environmental Health - Dept. of Molecular Genetics and Diagnostics
1097 Budapest
Gyáli u. 2-6.
HUNGARY
T: (+361) 476 1362


Newcastle University

For further details click here or contact:
 
Stephen Lynn -TREAT-NMD Project Manager
 
TREAT-NMD Office
Institute of Human Genetics
Newcastle University
International Centre for Life
Newcastle upon Tyne
NE1 3BZ
UK
T: +44 (0) 191 241 8697
F: +44 (0) 191 241 8770
 

Santhera Pharmaceuticals (Switzerland) Ltd

For further details please click here or contact:
 
Thomas Meier - Chief Scientific Officer
 
Santhera Pharmaceuticals (Switzerland) Ltd.
Hammerstrasse 49
CH-4410 Liestal
SWITZERLAND
T: +41 (0) 61 906 89 65
F: +41 (0) 61 906 89 41


Universitat Autònoma de Barcelona

For further details please click here or contact:

Miguel Chillón
 
Gene Therapy group, 5th floor,
CBATEG, Edifici H
Universitat Autònoma Barcelona
Campus UAB
Bellaterra 08193
Spain
T: +34 935814199
 
 

Université Catholique de Louvain

For further details please click here or contact:
 
Peter Vandenbergh

 
Cliniques universitaires St-Luc
avnue Hippocrate 10
1200 Brussels
Belgium
T: +32 2 764 1311
F: +32 2 764 1082 
 

University College London

For further details please click here or contact:
 
Francesco Muntoni - Director
 
Dubowitz Neuromuscular Unit
1st Floor Institute of Child Health
30 Guildford Street
London WC1N 1EH
T: 020 7905 2111
F: 020 7905 2832
 
or
 
Richard A C Hughes
 
Cochrane Neuromuscular Disease Group   
MRC Centre for Neuromusccular Disease
PO Box 114   
National Hospital for Neurology and Neurosurgery
Queen Square   
London
WC1N 3BG  UK
Tel  + 44 207 380 6861
Fax  +44 207 829 8725


 

 

 


TREAT-NMD Coordination Office: T: +44 191 241 8605 Fax: +44 191 241 8770 E:
FP6 Logo TREAT-NMD is supported through Priority 1 (Life Sciences, Genomics and Biotechnology for Health) of the European Union’s FP6 under contract number LSHM-CT-2006-036825 EU flag