The CARE-NMD project
- Contacts
- Kathrin Gramsch Kathrin Gramsch has a Bachelor of Science Degree in Health Management and is a Certified...
- Janbernd Kirschner Dr. Jan Kirschner is coordinator of the TREAT-NMD Clinical Trial Coordination Centre (CTCC) based in...
- Sunil Rodger Sunil Rodger is the Communications Officer for CARE-NMD, a European project which aims...
- Julia Vry Julia Vry is a medical doctor in the Centre for Pediatrics and Adolescent Medicine of...
CARE-NMD, led by Dr Janbernd Kirschner (Freiburg), is a project funded by the EU’s Executive Agency for Health and Consumers to implement care standards for DMD in 19 European countries. Although expert centres for the care of patients with neuromuscular diseases do exist in most European countries, many patients still do not receive treatment in line with current guidelines.
The CARENMD project is establishing an inclusive reference network of care centres specializing in the treatment of DMD to analyze current treatment practices for patients with DMD, identify inequalities between and within participating European countries, and host information and training workshops to ensure dissemination and implementation of treatment recommendations at national and European level. Barriers to implementation will be identified and collaborative solutions sought in order to help stakeholders and decision-makers in the area of healthcare to take further action to improve the care of patients with DMD and other neuromuscular disorders.
