CMD patient organizations

Even when all the different types of CMD are considered together, the number of individuals affected is much smaller than for the more common types of neuromuscular disease like DMD and SMA. For this reason, there aren't very many organizations that deal exclusively with CMD. There are many more organizations that cover all neuromuscular diseases, and these ones of course also support individuals with CMD and their families.

Below you will find a list of patient organizations and support groups that cover Congenital muscular dystrophy. This list deals exclusively with CMD, while organizations that deal with all neuromuscular diseases including CMD are listed on the following page.

Organizations specifically for CMD

Cure CMD

United States of America

Cure CMD was established in 2008 with a mission to advance research for treatments and a cure for Congenital Muscular Dystrophy (CMD). Cure CMD works to improve the lives of those living with CMD through engagement and support of our community, and collaborates with dedicated patient, parent, research and government advocates worldwide to achieve our mission.

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12 Apr 2017