CMT patient organizations

Below you will find a list of all patient organizations and support groups that cover Charcot Marie Tooth. This list deals exclusively with CMT, while organizations that deal with all neuromuscular diseases including CMT are listed on the following page.

Organizations specifically for CMT

Use the box below to narrow results by
country or organization name

Associazione Italiana Malatta di Charcot Marie Tooth Associazione Italiana Malatta di Charcot Marie Tooth

Italy

The Italian Association of disease Charcot-Marie-Tooth (AICMT) is a non profit organization which was established in 1999.

More Info
Website www.aicmt.org

 

Associazionedi Volontariato per la Malattia di Charcot Marie Tooth Associazionedi Volontariato per la Malattia di Charcot Marie Tooth

Italy

ACMT-Net is an all-volunteer non-profit organisation - ONLUS (Organization Non Lucrativa of Uvolatility Social) enrolled in the Emilia Romagna Regional Associations with the purpose of self-help and mutual assistance among members and beyond.

More Info
Website www.acmt-rete.it

 

Charcot-Marie-Tooth Charcot-Marie-Tooth

United Kingdom

CMT United Kingdom mission is...

“Working to support those who are affected by Charcot-Marie-Tooth Disease, also known as Hereditary Motor and Sensory Neuropathy or Peroneal Muscular Atrophy”

More Info
Website www.cmt.org.uk

 

Charcot-Marie-Tooth Charcot-Marie-Tooth

Austria

CMT Austria was officially founded in 2004 after being part of Styrian Muscular Dystrophy Association for a number of years.

More Info
Website www.cmt-austria.at

 

Charcot-Marie-Tooth Charcot-Marie-Tooth

Belgium

The CMT association in Belgium wants to bring people with CMT / HMSN closer together by providing information in their quarterly newsletter whilst promoting research in CMT.

More Info
Website www.cmt-vlaanderen.be

 

Charcot-Marie-Tooth Charcot-Marie-Tooth

France

The association CMT-France was founded in January 1990 by Bernadine Robert and Jean-Charles Le Bars .

More Info
Website www.cmt-france.net

 

Charcot-Marie-Tooth Association Charcot-Marie-Tooth Association

United States of America

The CMTA is a nonprofit organization founded in 1983 whose goals are patient support, public education, promotion of research and ultimately the treatment and cure of CMT.

More Info
Email
Website www.charcot-marie-tooth.org

 

Charcot-Marie-Tooth Association Australia Charcot-Marie-Tooth Association Australia

Australia

The CMT Association in Australia (CMTAA) began as a Support Group in 1988, and was incorporated in 1990 as a registered charity. It is run by a group of volunteers who have personal experience of CMT, either as an individual or family member.

More Info
Email
Website www.cmt.org.au

 

Inherited Neuropathies Consortium - INC Inherited Neuropathies Consortium - INC

USA

The Inherited Neuropathies Consortium (INC) is an integrated group of academic medical centers, patient support organizations, and clinical research resources dedicated to conducting clinical research in different forms of CMT and improving the care of patients. Funded by the National Institutes of Health (NIH), the INC is part of the Rare Diseases Clinical Research Network. The operations of the INC are directed from Wayne State University in Detroit, MI.

More Info
Email
Call 01 319-356-8753 Website rarediseasesnetwork.epi.usf.edu

 
 
07 Mar 2011