CMT patient organizations
Below you will find a list of all patient organizations and support groups that cover Charcot Marie Tooth. This list deals exclusively with CMT, while organizations that deal with all neuromuscular diseases including CMT are listed on the following page.
Organizations specifically for CMT
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The Italian Association of disease Charcot-Marie-Tooth (AICMT) is a non profit organization which was established in 1999.
ACMT-Net is an all-volunteer non-profit organisation - ONLUS (Organization Non Lucrativa of Uvolatility Social) enrolled in the Emilia Romagna Regional Associations with the purpose of self-help and mutual assistance among members and beyond.
CMT United Kingdom mission is...
“Working to support those who are affected by Charcot-Marie-Tooth Disease, also known as Hereditary Motor and Sensory Neuropathy or Peroneal Muscular Atrophy”
CMT Austria was officially founded in 2004 after being part of Styrian Muscular Dystrophy Association for a number of years.
The CMT association in Belgium wants to bring people with CMT / HMSN closer together by providing information in their quarterly newsletter whilst promoting research in CMT.
The association CMT-France was founded in January 1990 by Bernadine Robert and Jean-Charles Le Bars .
United States of America
The CMTA is a nonprofit organization founded in 1983 whose goals are patient support, public education, promotion of research and ultimately the treatment and cure of CMT.
The CMT Association in Australia (CMTAA) began as a Support Group in 1988, and was incorporated in 1990 as a registered charity. It is run by a group of volunteers who have personal experience of CMT, either as an individual or family member.
The Inherited Neuropathies Consortium (INC) is an integrated group of academic medical centers, patient support organizations, and clinical research resources dedicated to conducting clinical research in different forms of CMT and improving the care of patients. Funded by the National Institutes of Health (NIH), the INC is part of the Rare Diseases Clinical Research Network. The operations of the INC are directed from Wayne State University in Detroit, MI.