Agata Robertson

Registry Coordinator and Curator, FKRP Global Registry and UK SMA Patient Registry

Newcastle University

Agata Robertson

Within TREAT-NMD Agata is responsible for leading the work around the TREAT-NMD affiliated registries.
She is the FKRP Global Registry Coordinator. She is also responsible for the UK SMA Patient Registry in a joint initiative between TREAT-NMD and the SMA Support UK (previously Jennifer Trust for SMA).

She joined the team in 2013 to support the TREAT-NMD Alliance and its committees: Executive Committee, TREAT-NMD Global Database Oversight Committee (TGDOC) and TREAT-NMD Advisory Committee for Therapeutics (TACT).