Dimitrios Athanasiou

DMD Patient Advocate, UPPMD Board Member, EMA Patient Expert in DMD

Position in Extended Committee - Patient Advocate
Dimitrios Athanasiou

Dimitrios Athanasiou holds a BA in Business Administration and an MBA in Financial Management. He speaks three European languages and has more than 25 years’ experience with international business projects, working in various countries in consulting, developing and reorganizing companies.

When his son was diagnosed with Duchenne Muscular Dystrophy, a fatal and incurable rare disease, he become a strong international patient advocate in Duchenne and Rare Diseases.

Having a passionate personality and technocratic background, he educated himself with basic rare disease and advocacy knowledge via the EURORDIS Summer School and then with the 14 month Patient Expert Course of the European Patient Academy of Therapeutic Innovation (EUPATI) acquiring basic biotech and regulatory knowledge, where he served as a Member of EUPATI’s Course Committee for the next year, representing the patient voice. Being a EUPATI fellow, he established the Greek EUPATI National Liaison Team.

Locally in Greece he established the Parent Project MDA HELLAS, creating an active network of patient advocates, and became a board member of the Duchenne Global Organization, United Parent Project MD (UPPMD) promoting a vibrant network of patient organizations where children with DMD will have access to the best care irrelevant to where they live.

In his role as a patient advocate, he interacts with Regulators, HTA authorities, Industry and Academia promoting the rights of patients with rare diseases to have access to the best care possible and to new, safe and affordable drugs for rare diseases.

As a strong and commited patient advocate for DMD and rare diseases, he serves the patient community through various roles. He is a EURORDIS EPAC/TAG member, he serves in the Board of the European Forum for Good Clinical Practice (EFGCP), Co-Chairing the Children Medicines Working Party (CMWP), Patient Advisor in TREAT-NMD Advisory Committee for Therapeutics (TACT), DIA’s Program Committee Member and many others.

In 2014 he was nominated patient expert by EMA for DMD and has participated in several of EMA\'s Scientific Advice, SAG, Protocol Assistance and CHMP pilot meetings for Duchenne, providing the essential patient representative perspective when companies request regulatory advice or approval.

In 2017 he was appointed by the European Commission to serve as PDCO member in European Medicines Agency representing EURORDIS and the Rare Disease Community.


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