Filippo Buccella

Italian DMD Registry Curator

Parent Project - Genitori contro la Distrofia Musculare di Duchenne & Becker ONLUS Italy

Filippo Buccella

As father of a young man affected by DMD, Filippo has been working since 1996 to advocate for Duchenne and Becker patients in Italy, Europe and worldwide, always convinced that their work could open a new path for many other similar diseases/conditions. Filippo is also a pharmacist and his knowledge of the mechanisms of action of drugs and/or drug development are very helpful when it comes to translating complicated topics for families and patients. He has been involved with patient registries from the very beginning and have set up a national DMD/BMD patient registry in Italy, which is has been instrumental for conducting clinical trials.

Disclosure Statement:

I and/or my spouse/partner have no financial interest with any organization that could be perceived as a real or apparent conflict of interest of the subject of this activity.

I am not a member of a steering committee or advisory board or equivalent body, or an investigator, for an industry-sponsored clinical trial / pharmaceutical company.