Nathalie Goemans

M.D

UZ Leuven

Position in Global Database Oversight Committee - TGDOC - Chair of TGDOC
Nathalie Goemans

Dr Nathalie Goemans (M.D. PhD) is a paediatrician and child neurologist, with certification in rehabilitation medicine and is currently head of the Neuromuscular Reference Centre within the department of Paediatrics and Child Neurology at  the University Hospitals Leuven, Belgium, and consultant in neuropediatrics at DVC St Jozef Antwerp, Belgium, a rehabilitation centre with residential setting for neuromuscular patients.

Nathalie’s special interests lay in the diagnosis, multidisciplinary aspects of care and management of paediatric neuromuscular disorders in general.  She has developed a particular interest in the dissemination of standard of care and ethical issues in NMD, as well as in the design and conduct of clinical trials in neuromuscular disorders, more particularly in DMD and SMA. Nathalie has participated in development and dissemination of international guidelines for diagnosis and treatment of NMD and  has longstanding experience in clinical research in NMD.

Nathalie is actively involved in the development  of protocols for international multicentre trials and  is investigator of ongoing clinical trials in DMD such as PRO051-02: phase 1/2, PRO 044 phase ½, GSK DMD 114044, PTC124-GD-007-DMD: phase 2b, and the TROPHOS study in SMA.

Disclosure statement:

I and/or my spouse/partner have no financial interest with any organization that could be perceived as a real or apparent conflict of interest in the context of the subject of this activity.

I am a member of a steering committee or advisory board or equivalent body, or an investigator, for an industry-sponsored clinical trial / pharmaceutical company.
I have received compensation from PTC Therapeutics for consulting
I have received travel grants in 2011, 2012 and 2014 from Prosensa for participation in the AAN congress
I have functioned in advisory boards for Shire, UCB, Pfizer, Italfarmaco and Eli Lilly (total compensations <2,000 Euro)
I am a Principal Investigator for clinical trials sponsored by Prosensa, PTC and Eli Lilly but did not receive personnel or institutional compensations exceeding the trial costs


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