Patient organizations for myotonic dystrophy

Below you will find a list of all patient organizations and support groups that cover myotonic dystrophy. This list deals exclusively with myotonic dystrophy, while organizations that deal with all neuromuscular diseases including myotonic dystrophy are listed on the following page.

Organizations specifically for myotonic dystrophy

Use the box below to narrow results by
country or organization name

ANADIM - National Association of Myotonic Dystrophy ANADIM - National Association of Myotonic Dystrophy

Brazil

The National Association of Myotonic Dystrophy ANADIM in Brazil is initially a virtual organization representing those with myotonic dystrophy throughout the country. Their aim is to provide specific representation for those with myotonic dystrophy whilst collaborating with other organizations in the field. They also want ensure the appropriate level of treatment for each patient is available whilst raising the profile and fighting for the rights and needs of those with myotonic dystrophy.

More Info
Website www.anadim.net

 

Marigold Foundation Marigold Foundation

Canada

The Marigold foundation is a registered Canadian charity. Over the last 30 years they have earned a strong reputation for being hands-on: they use a business-like approach and take a very active role in areas that are meaningful to them.

More Info
Website www.marigoldfoundation.org

 

Myotonic Dystrophy Foundation Myotonic Dystrophy Foundation

United States of America

The Myotonic Dystrophy Foundation (MDF) is the world's largest patient organization focused solely on myotonic dystrophy. Our mission, "Care and a Cure," is to enhance the quality of life of people living with myotonic dystrophy (DM) and advance research focused on treatments and a cure.

More Info
Website www.myotonic.org

 

Myotonic Dystrophy Support Group Myotonic Dystrophy Support Group

United Kingdom

The Myotonic Dystrophy Support Group is a registered charity, founded by Margaret Bowler in 1989, run by volunteers and dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy.

More Info
Website www.mdsguk.org

 
 
12 Apr 2017