EPIRARE International workshop rare disease and orphan drug registries

8 - 9 Oct 2012

Rome, Italy

The International Workshop “Rare Diseases and Orphan Drug Registries” is organized in the framework of the EPIRARE project (“European Platform for Rare Disease Registries”, co-funded by EU Commission, DG SANCO).

The workshop is open to scientists, patient organisations, policy makers and enterprises.

The main aims of the workshop are:

  • to share different experiences of rare diseases registration in Europe;
  • to highlight the strengths and opportunities of rare disease and orphan drug registration activities;
  • to promote the sustainability and networking of registration activities;
  • to share views in building up a common platform for registration activities devoted to research, public health and other purposes.

Deadline for abstract submission is 31st July 2012.
Deadline for registration is 31st July 2012.
Notification of abstract acceptance is 31st August 2012.

Viale Regina Elena, 299
00161 Rome

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