Cooperative International Neuromuscular Research Group Scientific Symposium

10 - 11 Nov 2012

Washington DC, USA

As part of a 5-year Rehabilitation Research and Training Center Grant funded by the National Institute of Disability and Rehabilitation Research (NIDDR) the Cooperative International Neuromuscular Research Group (CINRG) has joined the Fifth Programs in Clinical and Translational Research with the NIDRR sponsored State of the Science meeting to provide an outstanding venue of translational and clinical research updates.

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The two back to back meetings will take place on Saturday & Sunday, 10 and 11 November 2012, outside Washington DC.

The Scientific Symposium portion on Saturday will provide updates on several programs in clinical and translational research in muscular dystrophy and rehabilitation medicine. The NIDRR State of the Science in Neuromuscular Disorders will start on Saturday afternoon and will focus on: (1) clinical outcome measures, (2) use of registries and longitudinal epidemiological studies to develop evidence-based medicine in NMDs, (3) experience and evaluation of recent clinical trials, (4) burden of care, and (5) efforts to harmonize outcome measures and encourage translational medicine.

The goal of the conference is to reach a consensus on the feasibility, validity and responsiveness of clinical and Health-Related Outcome of Life (HRQOL) measures, specifically measures of mobility, motor function, and secondary conditions.  It is anticipated that there will be an attendance of approximately 125 including international researchers, clinicians, clinical evaluators, industry, consumer advocacy organizations/parent groups and Federal agencies.

The CINRG membership only meeting will precede these two programs. The CINRG membership meeting provides training and updates for the CINRG network. The CINRG Clinical Evaluator training session will take place on Thursday 8th November and the CINRG full membership meetings will be held on Friday 9th November.

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