The Second Iranian Congress of Neuromuscular Disorders

4 - 8 Jul 2012

Tehran, Iran

Neuromuscular disorders represent a growing area of interest in Iran, a vast country with a population of 77m characterized by its great ethnic variety and high consanguinity rate.

The second Iranian congress of neuromuscular disorders and electrodiagnosis was held between 4-8 July 2012 in Tehran and was supported by the Iranian Neurological Association and the Institut de Myologie in Paris, France.  Approximately 200 professionals from across Iran and beyond - including adult neurologists, pediatric neurologists, human geneticists, rehabilitation physicians, radiologists and general practitioners - contributed to this event. International participants included:

J. Andoni Urtizberea - France
Shahram Attarian - France
France Leturcq - France
Pierre Carlier - France
Kian Salajegheh - USA
Haluk Topaloglu - Turkey
Ziad Nahas - Lebanon
Elena Zaklyminskaya - Russia
Bruno Reversade – Singapore

Individuals with NMD and the Iranian Muscular Dystrophy Association were also active contributors.

Second Iranian Congress of Neuromuscular Disorders

The purpose of the 5-day congress, which was coordinated by Shariar Nafissi, Massoud Houshmand, Farzad Fatehi and J. Andoni Urtizberea, was to update the Iranian medical community about recent developments in the neuromuscular field and also to create more awareness among the general public in Iran. To ensure these goals were achieved, Iranian media gave the congress significant coverage, the positive results of which were felt both by the organizers and the patients themselves.

Medical universities and hospitals across Iran were also informed and the expectations of the patients, advocacy groups and medical doctors with regards to accuracy of diagnosis and the implementation of proper patient management have now been raised.

The meeting comprised three distinct sections:

1 - An electrodiagnostic workshop including muscle sonography, muscle MRI (by Pierre Carlier), single fiber EMG (by Shahriar Nafissi) and EMG guided Botulinum toxin injection (by Hamid Noorollahi).

2 - Clinical aspects of neuromuscular disorders including myopathies, polyneuropathies, motor neuron disorders and neuromuscular junction disorders. Many topics were covered by the 30 lectures that were delivered during the 6 sessions which featured Iranian and guest speakers.

3 - Myology from a clinical and genetic perspective. The importance of efficient networking and dissemination of knowledge was stressed on many occasions. Two very exciting interactive clinical workshops were organized during these last two days. This allowed Iranian specialists to present solved or unsolved case reports, all of them of great interest.

The meeting undoubtedly paved the way for a better cooperation between different local stakeholders, with two immediate objectives: more accurate diagnosis, notably at the molecular level, and better daily care for patients. Additionally, important collaborative links with European myology teams were developed and built upon throughout the congress.

If you are interested in these promising Euro-Iranian interactions in the field of myology, please contact ja.urtizberea@free.fr or s_nafissi@yahoo.com