Parent Project Muscular Dystrophy 2019 Advocacy Conference

3 - 5 Mar 2019

Washington DC

Come and advocate for Duchenne directly with Members of Congress. Our annual Advocacy Conference continues to yield results for the Duchenne community.

Over the last 17 years Duchenne Advocacy has resulted in...

  • A full and promising Duchenne drug development pipeline with over 40 companies developing drugs for Duchenne.
  • Over $700 million in funding for Duchenne related programs at the National Institutes of Health, Center for Disease Control, and Department of Defense.
  • A standard of care established and recently updated for all those diagnosed with Duchenne, which has markedly improved the quality of life and extended lifespan.

We hope you can join us in DC.  It will be an important year given the new Congress in town and we will need to educate them about the history of Duchenne support by the federal government.

Basic Agenda

Sunday, March 3rd 3pm-7:30pm - Advocate training (Mayflower Hotel)

Monday, March 4th, 9am-4pm - Duchenne Policy Forum meeting (Mayflower Hotel)

Tuesday, March 5th, 9am-5pm - Hill meetings - both House and Senate (Capitol Hill)

For more information and to register please go to the PPMD website here

MORE INFO