Familienkonferenz von ZNM - Zusammen Stark! (Family Conference of ZNM - Together Strong!)

10 - 12 May 2019

Hessen Hotelpark Hohenroda, Germany

This conference is for German-Speaking people interested in and/ or affected by centronuclear myopathy, myotubular myopathy and central core myopathies (caused by gene mutations in MTM1, DNM2, RYR1, SEPN1, BIN, TTN, ...)

The objective of this event is to gather the families, to counsel them in their daily lives, to explain latest achievements in research but also to make researchers and therapists aware of our group.

For more information please contact Jennifer Bilbao (jennifer.bilbao@znm-zusammenstark.org)