Welcome to the latest TREAT-NMD newsletter. This edition features the launch of the TREAT-NMD Registry of Outcome Measures and a report published in Neuromuscular Disorders on TREAT-NMD's work on the harmonisation of outcome measures.
As always, we hope you enjoy the newsletter and look forward to hearing your comments - write to info@treat-nmd.eu with anything you'd like to say. Feel free to forward this message to anybody you think might find it of interest, or invite them to sign up to receive the newsletter by visiting our website. Back-issues of this newsletter can be found on our website at http://www.treat-nmd.eu/patients/news/ezine-archive/
Best wishes,
Katie, Volker, Steve, Emma, Rachel and Samantha: the Newcastle TREAT-NMD team
16-18 Nov 2008 Inherited Neuromuscular Diseases: Translation from Pathomechanisms to Therapies
06-09 Jan 2009 Workshop: The Multiple Faces of Lamins in Aging and Disease
02-04 Feb 2009 TREAT-NMD Governing Board and Science and Technology Advisory Council Meetings
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TREAT-NMD Registry of Outcome Measures now online!A new key tool for researchers planning clinical trials in neuromuscular diseases is now online. The Registry of Outcome Measures is a free resource created by TREAT-NMD that collates essential information about the measures used to test whether a treatment is effective.  MORE > |
Outcome measures harmonisation report published in Neuromuscular DisordersTREAT-NMD's aims to harmonise the use of outcome measures for SMA and DMD clinical trials moved a step closer with the publication of a report on three outcome measures meetings in the Neuromuscular Disorders journal. The full text of the article can be obtained via the link below.  MORE > |
Myotubular Trust call for projectsThe UK patient charity the Myotubular Trust is looking to fund projects that will help find a cure and / or a treatment for any of the three types of myotubular myopathy, focusing on research that would not generally be funded by public or industrial funding sources. Application deadline: 19th December 2008.  MORE > |
Cure CMD launch and patient registry plansA new initiative in the congenital muscular dystrophies field has been launched. Cure CMD emerged from a shared vision to find a treatment or cure for the Congenital Muscular Dystrophies and its goals include patient/parent support and information and a patient registries initiative linked with TREAT-NMD.  MORE > |
International scholarships to 2009 AAN conferenceThe AAN 2009 International Scholarship Award is designed to provide eligible international candidates the opportunity to attend and participate in the Annual Meeting. Up to ten scholarships will be provided to eligible applicants who demonstrate financial need and interest in attending the Annual Meeting. All nominees must provide a CV, including a list of publications, and must submit an abstract for the 2009 Annual Meeting. The deadline for submitting abstracts for the 2009 Scientific Program is November 3, 2008. MORE > |
Workshop: The Multiple Faces of Lamins in Aging and Disease - 6 Jan 2009An interdisciplinary workshop taking place in Vienna will bring together scientists from diverse research areas working on lamins and laminopathies. MORE > |
