Welcome to the latest TREAT-NMD newsletter. As well as news of the updating of the Declaration of Helsinki, a reminder of tonight's Telethon on French TV and a job opportunity at Newcastle, this edition features news of three conferences, including an announcement about the major TREAT-NMD/NIH International Conference in November 2009.
As always, we hope you enjoy the newsletter and look forward to hearing your comments - write to info@treat-nmd.eu with anything you'd like to say. Feel free to forward this message to anybody you think might find it of interest, or invite them to sign up to receive the newsletter by visiting our website. Back-issues of this newsletter can be found on our website at http://www.treat-nmd.eu/patients/news/ezine-archive/
Best wishes,
Katie, Volker, Steve, Emma, Rachel and Samantha: the Newcastle TREAT-NMD team
06-09 Jan 2009 Workshop: The Multiple Faces of Lamins in Aging and Disease
02-04 Feb 2009 TREAT-NMD Governing Board meeting
28 Feb 2009 - 01 Mar 2009 First Asian conference on Duchenne muscular dystrophy (DMD)
26-27 Mar 2009 UK Neuromuscular Translational Research Conference
12-15 May 2009 The Nottingham Systematic Review Course 2009
09-12 Sep 2009 IDMC-7 International Myotonic Dystrophy Consortium
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TREAT-NMD - NIH International Conference 17-19 November 2009In November 2009 TREAT-NMD will host its first international conference in Brussels, Belgium. The aim of this major global meeting, which is being set up in collaboration with the US NIH, is to share progress in the area of translational medicine in inherited neuromuscular diseases and set the future collaborative agenda. It will be a highly interactive meeting with a strong focus on the key issues surrounding "trial readiness" in the neuromuscular field. Put the date in your diary now!  MORE > |
UK Neuromuscular Translational Research Conference 26-27 March 2009Following the success of the first translational research conference for neuromuscular disease hosted by the MRC Centre and the MDC in London in 2008, a second UK conference will take place in Newcastle in 2009. This two-day conference aims to showcase the best UK neuromuscular science, and highlight its translation into patient benefit. The conference will include invited keynote speakers providing state of the art overviews, as well as platform and poster presentations from submitted abstracts. Professor Dame Kay Davies will deliver the John Walton Lecture.  MORE > |
First Asian Conference on Duchenne Muscular Dystrophy in Bangalore, IndiaUnited Parent Projects Muscular Dystrophy (UPPMD) are hosting a conference for parents of boys diagnosed with Duchenne and Becker Muscular Dystrophy and their clinicians in the Asian region.  MORE > |
Helsinki Declaration updatedA revised version of the Declaration of Helsinki, which sets out ethical principles for medical research involving human subjects, has been adopted by the World Medical Association. The Declaration, while not legally binding, is widely regarded as the cornerstone of human research ethics. New paragraphs of the revised Declaration deal with consent for research on human material, such as blood, tissues, and DNA, and human data and require clinical trials to be registered in a publicly accessible database. The full text of the Declaration is available here and further information on the update can be found here.  MORE > |
Web development job opportunity in NewcastleThe TREAT-NMD coordination team in Newcastle is advertising for a web development officer to support the expansion of the TREAT-NMD website and other internet-based communication tools. For further details or to apply, please see the full job description. Applications must be submitted online before 4 January 2009. MORE > |
French Telethon starts tonight!TREAT-NMD partner the AFM (the French Muscular Dystrophy Association) has organised an annual "Telethon" on the first weekend in December every year since 1987. This major fund-raising operation, combining a 30-hour TV show and tens of thousands of local events across France, provides the majority of donations to the Association and also aims to raise public awareness of neuromuscular diseases. Tune in on France 2 at 1850 tonight!  MORE > |
