Welcome to the latest TREAT-NMD newsletter. This edition features information on an upcoming DMD diagnostics best-practice meeting, a job opportunity in Montpellier and a report on the recent EAMDA patient organisations meeting in Bulgaria.
As always, we hope you enjoy the newsletter and look forward to hearing your comments - write to info@treat-nmd.eu with anything you'd like to say. Feel free to forward this message to anybody you think might find it of interest, or invite them to sign up to receive the newsletter by visiting our website. Back-issues of this newsletter can be found on our website at http://www.treat-nmd.eu/patients/news/ezine-archive/
Best wishes,
Katie, Volker, Steve, Emma, Rachel and Samantha: the Newcastle TREAT-NMD team
03-04 Oct 2008 European Research Conference in Paediatric Neurology
16-18 Nov 2008 Inherited Neuromuscular Diseases: Translation from Pathomechanisms to Therapies
02-04 Feb 2009 TREAT-NMD Governing Board and Science and Technology Advisory Council Meetings
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WMS comes to NewcastleNext week is a busy week for many academics involved in muscle disease research as the 13th Annual World Muscle Society Congress gets underway in Newcastle. TREAT-NMD will have a booth near the registration desk at the conference hotel, and if you are attending the meeting we hope you drop by to meet the coordination team!  MORE > |
Workshop: Best practice in molecular diagnostics of DMD and BMDIn conjunction with the TREAT-NMD activities on diagnostic standards, a working group of European organisations has joined forces to hold a best practice meeting on the molecular diagnostics of Duchenne and Becker muscular dystrophies, to be held on 14-16 November 2008 in Naarden in the Netherlands. Register your interest before 15th October.  MORE > |
Job opportunity at the Molecular Genetic Centre of the Montpellier University Hospital: Medical Doctor specialized in molecular geneticsThe Molecular Genetic Centre of the University Hospital of Montpellier has an opening for a M.D. specialized in molecular genetics, with a strong background in human genetics including laboratory diagnosis and research. The selected candidate will have first a contract of at least one year that may be followed by a permanent position.  MORE > |
Meeting report: 38th EAMDA annual meetingThe 38th annual meeting of the European Alliance of neuroMuscular Disorders Associations (EAMDA) took place from 11-14th September 2008 in Sofia, Bulgaria. The meeting was organised together with the Bulgarian Neuromuscular Diseases Association (BNMDA), ENMC and the TREAT-NMD network. The main themes of the conference were “Research & Therapy Development Process”, “Treatment & Treatment Opportunities” and “Standards of Care & Practical Issues”.  MORE > |
Action Duchenne conference and call for postersAction Duchenne, a UK Duchenne patient organisation, are holding their annual conference in London on 31st October/1st November. They are also offering a poster prize of £500 for the best poster on Duchenne research by a research group.  MORE > |
Santhera publication on idebonone in European Heart JournalTREAT-NMD partner Santhera Pharmaceuticals, a Swiss specialty pharmaceutical company focused on neuromuscular diseases, has announced the publication of study results in the European Heart Journal that support the potential efficacy of Santhera's lead compound SNT-MC17 (INN: idebenone) in Duchenne Muscular Dystrophy.  MORE > |
