GNE Myopathy / HIBM overview

This section brings together information about GNE Myopathy / HIBM from across the website. Much of the information here is especially relevant for individuals and families affected by GNE Myopathy, but family doctors and researchers should also find something of interest.

Browse through this section for specific information about GNE Myopathy, and also take a look at the other areas of our website for more general information about TREAT-NMD and the resources we offer.

About GNE Myopathy / HIBM

An overview of GNE Myopathy - how it is caused, how it is inherited, and what its symptoms are

Patient organizations

See a list of patient organizations and advocacy groups providing support for patients with GNE Myopathy


Patient Registries

Find out about various patient registries that are already operational or are at the planning stage.

Meetings and Events

Any GNE Myopathy / HIBM specific meetings, events or conferences will be available in this section


Clinical studies and trials

Find out about research projects and clinical trials in GNE myopathy

12 Apr 2017