International GNE myopathy Registry - Latest Newsletter

The seventh edition of the GNEM-DMP Newsletter is now available..

Highlights of this edition include:

  • GNEM-DMP Registry Update and Participation Overview
  • Use of Orthotics in Neuromuscular Diseases
  • GNE Myopathy International - Overview of Activities
  • Autosomal Recessive Inheritance and GNE myopathy
  • 10 Tips for Family & Caregivers
  • Mona Patel - My Story So Far

For more information on the GNEM-DMP Registry, including how to participate, visit www.gnem-dmp.com or email HIBM@treat-nmd.eu

GNEM-DMP Newsletter -2017 editions
March 2017 July 2017 October 2017
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24 Oct 2017