International GNE myopathy Registry - Latest Newsletter

The seventh edition of the GNEM-DMP Newsletter is now available..

Highlights of this edition include:

  • GNEM-DMP Registry Update and Participation Overview
  • Use of Orthotics in Neuromuscular Diseases
  • GNE Myopathy International - Overview of Activities
  • Autosomal Recessive Inheritance and GNE myopathy
  • 10 Tips for Family & Caregivers
  • Mona Patel - My Story So Far

For more information on the GNEM-DMP Registry, including how to participate, visit or email

GNEM-DMP Newsletter -2018 editions
July 2018 October 2018
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03 Apr 2018