International GNE myopathy Registry - Latest Newsletter

The seventh edition of the GNEM-DMP Newsletter is now available..

Highlights of this edition include:

  • GNEM-DMP Registry Update and Participation Overview
  • Use of Orthotics in Neuromuscular Diseases
  • GNE Myopathy International - Overview of Activities
  • Autosomal Recessive Inheritance and GNE myopathy
  • 10 Tips for Family & Caregivers
  • Mona Patel - My Story So Far

For more information on the GNEM-DMP Registry, including how to participate, visit www.gnem-dmp.com or email HIBM@treat-nmd.eu

GNEM-DMP Newsletter -2018 editions
March
2018
July 2018 October 2018
Arabic Download
Bulgarian Download
Chinese Download
Dutch Download
English Download
Farsi Download
French Download
German Download
Hebrew Download
Italian Download
Korean Download
Portuguese Download
Spanish Download
Turkish Download
 
03 Apr 2018