GNE Myopathy Disease Monitoring Program (GNEM-DMP) Steering Committee

The GNEM DMP was established by a team of researchers, doctors and patient representatives from USA, UK, Israel and Japan.  Representatives of the research team, clinicians, academics and patient representatives constitute the Steering Committee.  The Committee is overseeing the research and will ensure that the project is always acting in the patients best interests.

Members of the Steering Committee are:

12 Apr 2017