MTM-CNM Family Connection

MTM-CNM Family Connection

MTM-CNM Family Connection, Inc is a non-profit charitable organization with a mission to connect families affected by Myotubular Myopathy (MTM) and/or Centronuclear Myopathy (CNM) to resources, research, and relationships within the MTM-CNM community.

A primary activity of MTM-CNM Family Connection, Inc is to plan and host the bi-annual Family Conference in the United States, and a grounding principle that MTM-CNM Family Connection, Inc promotes is bringing the MTM-CNM Family community together to share one another's strengths, skills, and abilities. Community service and empowerment, through sharing one another strengths, is very important to our mission.

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