Cure CMD

Cure CMD

Cure CMD is an all-volunteer nonprofit organization founded in April 2008 by three parents with a mission to raise CMD awareness and identify treatments for the CMDs. Cure CMD has driven forward with considerable momentum - having launched the international CMD registry (CMDIR), a CMD BioBank, funded just over 200 thousand USD in research last year in partnership with SAM including a pilot biomarker study vetted through our SMAB led by Dr. Bonnemann, a longitudinal outcome measure study, and several scientific conferences with buy-in from TREAT-NMD, NIH, MDA and the international scientific and clinician community.


Website www.curecmd.org

 

Anne Rutkowski Anne Rutkowski

Dr Anne Rutkowski is a practising board-certified emergency medicine physician in Los Angeles. Anne's daughter has congenital muscular dystrophy, subtype dystroglycanopathy.

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Susan Sklaroff Van Hook Susan Sklaroff Van Hook

Susan Sklaroff-Van Hook is a project support volunteer for the advocacy organization Cure CMD and is currently leading the initiative to develop lay guidelines to best practice care of CMD on behalf of Cure CMD.

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Diane Smith-Hoban Diane Smith-Hoban

Diane Smith-Hoban is the mom to two great boys – Luke is 14 and has UCMD and his brother Christian is 13.  She is a social worker by training with an MSW degree from Temple University and has worked extensively in the child welfare system in Philadelphia, mostly as a child advocate representing child victims of abuse and neglect.

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