Duchenne Foundation

Duchenne Foundation

The Duchenne Foundation, a member of the United Parents Projects, works to improve the lives of Australian persons and families affected by Duchenne and Becker muscular dystrophy. Using national and international collaboration they aim to improve the treatment, quality of life and long-term outlook of patients with of DMD and BMD through research, education and advocacy.

The Duchenne Foundation, a member of the United Parents Projects, works to improve the lives of Australian persons and families affected by Duchenne and Becker muscular dystrophy. Using national and international collaboration they aim to improve the treatment, quality of life and long-term outlook of patients with of DMD and BMD through research, education and advocacy.

The Duchenne Foundation realizes that the 40 diseases in the muscular dystrophy group have very different causes. Only Duchene and Becker are dystrophinopathies thus, specific treatments are needed to alleviate these two sister diseases. The treatment will not work for other MD’s and vice versa. DF concentrate on those affected persons who have least time, those with the most common and most devastating disorder.


To this end, Parent Projects worldwide are committed to: a) networking to find the best treatments and research avenues, b) lobbying and fundraising, c) gathering information and compiling consensus documents and multimedia educational materials. Parent Projects around the world have built a knowledge sharing community. So far we have expedited many scientific studies, made certain treatments the accepted standard of care and most importantly added quality and quantity to our children’s lives.

Count on us to make Australians with DMD count.

Contact:
Deborah Robins
Director
Duchenne Foundation
PO Box 468
Smithfield Q 4878
Australia


Website www.duchennefoundation.org.au
Website www.blueball.org.au