Duchenne Parent Project

Duchenne Parent Project

Guided by the foundation president Elizabeth Vroom the Duchenne Parent Project in the Netherlands is an organization founded by parents of children with Duchenne muscular dystrophy. The project's website contains information in Dutch about DMD and the foundation itself along with, their activities and Duchenne Heroes.

The status of the latest research, care information for those with DMD and how you can help the foundation are also available on the website.


Website www.duchenne.nl

 

Elizabeth Vroom Elizabeth Vroom

Elizabeth Vroom is founder and president of the Duchenne Parent Project Netherlands since 1995 and Chair and co-founder of the World Duchenne Organisation (UPPMD). She is the mother of an adult son with Duchenne Muscular Dystrophy.

Duchenne Parent Project Netherlands funded more than 130 research projects towards the development of viable treatments in Academia and industry around the globe. The organisation is also involved the development of exoskeletons and other technologies for Duchenne Muscular Dystrophy. The World Duchenne Organisation (UPPMD) represents the global community, plays a role in the dissemination of Standards of Care and initiated the World Duchenne Awareness Day.

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