Duchenne Parent Project

Duchenne Parent Project

Guided by the foundation president Elizabeth Vroom the Duchenne Parent Project in the Netherlands is an organization founded by parents of children with Duchenne muscular dystrophy. The project's website contains information in Dutch about DMD and the foundation itself along with, their activities and Duchenne Heroes.

The status of the latest research, care information for those with DMD and how you can help the foundation are also available on the website.


Website www.duchenne.nl

 

Elizabeth Vroom Elizabeth Vroom

Elizabeth Vroom is the president of the Dutch Duchenne Parent Project and the chair of the worldwide United Parent Projects Muscular Dystrophy (UPPMD).

She is a member of the TREAT-NMD Project Ethics Council as well as the TACT committee and is a practising Orthodontist.

Elizabeth is invited to speak at many international conferences about DMD and related issues.

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