End Duchenne

End Duchenne

End Duchenne is  nonprofit  organization in the Czech Republic  focused  on Duchenne. ED is dedicated to improving  quality of care about DMD boys, advocacy, education and support of research. The Czech Duchenne parents  community  was established by Pavlina and Martin Petrasek in 1998, when their  son Martin was diagnosed with Duchenne Muscular Dystrophy.

www.endduchenne.cz

Email: info@endduchenne.cz