The European Neuromuscular Centre - ENMC

The European Neuromuscular Centre - ENMC

Established in 1989, the ENMC has been instrumental in facilitating communication and support for the European neuromuscular disease community. In particular, its experience in hosting and funding workshops and stimulating the establishment of research consortia and clinical trials makes the ENMC a key player in Europe in the Network of Excellence in NMD.

The ENMC’s expertise is in communication and management. It is supported by and has strong ties with European-wide patient organizations. The ENMC is supported by 9 patient organizations throughout Europe. The ENMC organizes 9-12 scientific and clinical trial workshops a year for researchers in the field of Neuromuscular Disease.

While most participants are from European countries, researchers and scientists from around the world also participate in the ENMC workshops. The ENMC Clinical Trial Network was established in 2001 to promote the development of protocols and outcome measures for clinical trials.



Baziel van Engelen Baziel van Engelen

Baziel van Engelen studied medicine at the Radboud University Nijmegen Medical Centre and studied philosophy at the University of Amsterdam which he finished cum laude in 1992. He did his Neurology residency at the Universities of Berlin and Nijmegen, followed by a research fellowship in the Mayo Clinic and Mayo Foundation in Rochester Minnesota, USA. He became associate professor for neuromuscular diseases at the Radboud University Nijmegen Medical Centre in 2000, full professor in 2003, and ENMC research director in 2010. He has published over 250 articles in his research field. His focus is on clinical and translational research of neuromuscular disorders, especially myopathies.

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Jes Rahbek Jes Rahbek

Jes is a specialist in neuromuscular rehabilitation and also a volunteer in Muskelsvindfonden, the Danish patient organization for NMD. Additionally Jes is Chairman of Muskelsvindfonden's 1) scientific committee, 2) ethical committee and 3) international relations committee.

He represents Muskelsvindfonden in the ENMC where he has just been elected Chairman of the Executive Committee.
Jes works as Chief Medical Officer and Director of the Danish National Rehabilitation Centre for Neuromuscular Diseases and is an associated partner in CARE-NMD which is a DMD project under TREAT-NMD.

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Annelies Zittersteijn Annelies Zittersteijn

As the Management Assistant, Annelies Zittersteijn is responsible for all administrative and organisational aspects of the ENMC workshops.

She is the principal contact person for participants with administrative matters. Present in the office three days a week and also present during the workshops in Naarden, Annelies is available to assist the workshop leader and attend to any organisational details involving the participants.

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