Neuromuscular Disease Foundation

Neuromuscular Disease Foundation

The Neuromuscular Disease Foundation (NDF), is a nonprofit organization dedicated to raising awareness and encouraging screening for NMD and to direct funding to scientists who are working to find a treatment and cure for neuromuscular diseases, including GNE Myopathy/HIBM. NDF is a world leader in funding and support for GNE. NDF has the unique ability to promote collaboration within the scientific community in search of treatment and cures for NMD.

Address
269 South Beverly Drive, Suite 1206
Beverly Hills
CA 90212
United States of America

Email

Website www.ndf-hibm.org

Call 3107362978

 

Lale' Welsh Lale' Welsh

Lale' Welsh is the Executive Director of the Neuromuscular Disease Foundation (NDF), a nonprofit organization whose mission is to raise awareness, encouraging screening and find treatments and a cure for NMD including GNE Myopathy/HIBM. NDF directs funding to scientists and researchers in this field of study. Ms. Welsh has served as a management consultant for over 20 years, and has an executive background in Silicon Valley tech-marketing, and has dedicated the past 12 years to working within the public benefit sector.

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Call 3107362978

 

Lalé Welsh Lalé Welsh

Former Silicon Valley Executive (AT&T, Allianz, Monster), Lale Welsh has been a management consultant to nonprofits and governmental agencies, with the goal of applying compliant business solutions to the Public Benefit sector. Ms. Welsh is currently the Executive Director of The Neuromuscular DIsease Foundation in Beverly Hills, and works to promote research, funding and awareness for rare genetic diseases, and in particular, GNE myopathy (HIBM).

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