Parent Project - Genitori contro la Distrofia Musculare di Duchenne & Becker ONLUS Italy

Parent Project - Genitori contro la Distrofia Musculare di Duchenne & Becker ONLUS Italy

Parent Project Association was started by parents with children affected by Duchene and Becker muscular dystrophy. Since 1996 it has worked together to accelerate the achievement of a therapy and to ensure and promote the best chance of treatment needed to raise the quality of life of children suffering from muscular dystrophy.

Parent Project is a Founding Member of UPPMD United Parent Projects Muscular Dystrophy which is an international federation created to disseminate the correct procedures of therapy and to finance scientific research.

The main activities of the association are providing information and support to families to promote and encourage scientific research in order to defeat the Duchene Muscular Dystrophy and Becker.


Website www.parentproject.org/italia

 

Filippo Buccella Filippo Buccella

As father of a young man affected by DMD, Filippo has been working since 1996 to advocate for Duchenne and Becker patients in Italy, Europe and worldwide, always convinced that their work could open a new path for many other similar diseases/conditions. Filippo is also a pharmacist and his knowledge of the mechanisms of action of drugs and/or drug development are very helpful when it comes to translating complicated topics for families and patients. He has been involved with patient registries from the very beginning and have set up a national DMD/BMD patient registry in Italy, which is has been instrumental for conducting clinical trials.

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