Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne.

They take a comprehensive approach in the fight against Duchenne—funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options.

Only this comprehensive approach will lead to the ultimate success—the day that 100% of those diagnosed can turn to a treatment that will end Duchenne.

PPMD was founded in 1994 by parents and grandparents who were frustrated by the lack of investment in Duchenne research. Today, their passion continues to drive the organization to improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne.

The name of the organization reflects our grassroots origins, parent-led focus, and passion, and is recognized around the world as the leader in the Duchenne community.

Because of their efforts, families affected by Duchenne have better access to state-of-the-art care information, research is moving forward at an accelerated pace, and legislation now exists to fund Duchenne research and outreach programs.


Website www.parentprojectmd.org

 

Patrick Moeschen

Patrick Moeschen is a 38-year-old, full-time music teacher living in Salem, NH. Mr. Moeschen was diagnosed with Becker Muscular Dystrophy at age 12. His very serious medical condition never held him back from following one of his passions and primary interest: music. A drummer since age 10, Mr. Moeschen decided to pursue a career in music, receiving a Bachelor in Music Education from U.Mass Lowell in 1995 (Magna Cum Laude). After completing college, Mr. Moeschen took an appointment at the Woodbury Middle School in Salem, NH teaching middle school band, music appreciation and jazz ensemble. In addition to his teaching responsibilities, Mr. Moeschen conducts private music lessons in his home studio.

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Pat Furlong Pat Furlong

Pat Furlong is the Founding President and CEO of Parent Project Muscular Dystrophy (PPMD) which she founded together with other parents of young men with Duchenne in 1994.

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