The Information Point

The Information Point

The Information Point, established in 2001, is a source of information and support for Myotubular and Centronuclear myopathy.

Founded by Toni Abram, herself diagnosed with Centronuclear myopathy the Information Point is comprehensive guide to these conditions. In addition the organisation is responsible for the "Big Sunflower Project" an initiative to raise awareness.


Website centronuclear.org.uk