United Duchenne Parent Project

United Duchenne Parent Project

United Parent Projects Muscular Dystrophy (UPPMD) is owned and managed by parent project organisations set up by parents of children with Duchenne Muscular Dystrophy in many different countries all over the world. These national projects are run by parents for parents. UPPMD is managed by parents who lead the national parent projects.

The organisation came together after we realised that there was no sense in working in isolation from each other. We all share the same aims and dreams and they can be realised more efficiently using collective experiences and resources.


Website www.uppmd.org

 

Elizabeth Vroom Elizabeth Vroom

Elizabeth Vroom is the president of the Dutch Duchenne Parent Project and the chair of the worldwide United Parent Projects Muscular Dystrophy (UPPMD).

She is a member of the TREAT-NMD Project Ethics Council as well as the TACT committee and is a practising Orthodontist.

Elizabeth is invited to speak at many international conferences about DMD and related issues.

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