Spinal Muscular Atrophy - SMA
Czech Republic
Kolpingova rodina Smečno
kancelář sdružení
Tomanova 1671, 274 01
Slaný
tel: +42 0 312 526 768
fax: +42 0 312 526 768
www.dumrodin.cz
www.spinalka.cz
Mgr. Helena Kočová
koordinátor Projektu Podpora rodin SMA
Kolpingova rodina Smečno, o.s.
Tomanova 1671
274 01 Slaný
IČO: 70929688
www.dumrodin.cz
region. pracoviště: České Budějovice
tel: +420 777 22 24 25
Also Anička has a website in English.
www.sma-anna.cz/en
France
Association Française contre les Myopathies - AFM,
Institut de Myologies,
47-83 boulevard de l'Hôpital,
75651 Paris Cedex 13,
France
Germany
SMA Deutschland
Werner-von-Siemens-Ring 13
75015 Bretten
Germany
Michael Kolodzig
+49 (0) 7252 973662
www.sma-deutschland.de/
SMA Initiative DGM/ Forschung und Therapie für SMA
c/o Inge Schwersenz,
Bohlenweg 21,
63739 Aschaffenburg,
Germany
Tel +49 60 21 9 50 56
www.initiative-sma.de
Israel
Families of SMA Israel
Box 3015
Kadima 60920
Israel
Tel: 972-50-5219401
Fax: 972-9-9563920
Anna Sery, Chairman
Italy
Famiglie SMA
Via Alberico II no. 4,
00193 Roma,
Italy
President - Domenico J. MARCHETTI
The Netherlands
VSN SMA group
Vereniging Spierziekten Nederland (VSN)
(Dutch Association for Neuromuscular Diseases)
Lt. Gen. van Heutszlaan 6
3743 JN Baarn
The Netherlands
Tel: (31) 35 54 80480
Fax: (31) 35 54 80499
www.vsn.nl/english/index.php
Spain
SMA Europe Spain
Asociació Catalana de Enfermetats Neuromusculars (ASEM Catalunya)
Montsec, 20-22
08030 Barcelona
Spain
Tel: +34 93 274 49 83
Fax: +34 93 274 13 92
Mónica Breitman, secretary
Turkey
SMA GRUBU ( TURKEY )
Mrs. Fulya Öğretir
Tel : +90 216 413 08 17( Turkish )
Tel : +90 535 715 37 81
http://www.smagrubu.net/sma/index.php?lang=english
Ukraine
Kharkiv Charitable Foundation
Children with spinal muscular atrophy
Gogolia street 7
61057 Kharkiv
Ukraine
Vitaliy M. Matyushenko (President)
Tel : +38 50 364 06 73
www.csma.org.ua
United Kingdom
Jennifer Trust SMA
Elta House - Birmingham Road
Stratford upon Avon
Warwickshire
CV37 0AQ
Tel: +44 (0)1789 267 520
Fax: +44 (0)1789 268 371
http://www.jtsma.org.uk/
