News
International consensus guidelines set out best-practice care for Duchenne muscular dystrophy
Click here to download full press release. A major international consensus document setting out best practice in care for Duchenne muscular... MORE >
BIO-NMD biomarkers project launched at official kick-off meeting
The BIO-NMD EU project (FP7, HEALTH-2009-2.4.4-1: Rare neurological diseases) “Identifying and validating pre-clinical biomarkers for diagnostics and therapeutics of Neuromuscular... MORE >
SMA Europe announces grant recipients
SMA Europe is pleased to announce the award of about €650,000 for research into Spinal Muscular Atrophy – SMA, in... MORE >
Interventions for increasing ankle range of motion in patients with neuromuscular disease
New Cochrane Neuromuscular Disease Group review: Interventions for increasing ankle range of motion in patients with neuromuscular disease. This new review... MORE >
Duchenne Ireland call for grant applications.
Duchenne Ireland aims to raise awareness of Duchenne Muscular Dystrophy at local, national and government level. Their objective is... MORE >
TACT first review meeting
A multidisciplinary group of seventeen members of the international TREAT-NMD Advisory Committee for Therapeutics met in Rome on the 6th-7th... MORE >
Mitochondrial disease trial in Newcastle, UK (m.3243A>G MELAS)
A Phase 2A, double blind, randomised, placebo-controlled, 28 day, two-arm, parallel group study of A0001 in patients with the 3243AG... MORE >
New Research Director for ENMC
ENMC is pleased to announce the appointment of Professor Baziel van Engelen (Nijmegen,the Netherlands) as ENMC Research Director. Professor... MORE >
New Centre for Neuromuscular Diseases
A new Centre for Neuromuscular Diseases was opened in Zürich, Switzerland in October 2009. It represents the main contact point... MORE >
AFM call for research proposals and new translational research committee
AFM is the French Muscular Dystrophy association, which was created in 1958 by a group of patients and their families. ... MORE >
Duchenne Parent Project Netherlands - Call for research proposals
The Dutch Duchenne Parent Project organistaion is calling for international researchers to submit their proposals. Each year DPP NL... MORE >
TACT announces drugs for first review
TACT, the TREAT-NMD Advisory Committee for Therapeutics, is pleased to announce that as of 15 December, the closing date for... MORE >
Magazine about neuromuscular research published for families
The Muscular Dystrophy Campaign has published the second issue of Target Research - the annual magazine dedicated to neuromuscular research... MORE >
Improvements to the Regulatory Affairs Database
Recent months have seen more improvements to the TREAT-NMD Regulatory Affairs Database, which is a valuable source of advice to all... MORE >
TREAT-NMD/NIH conference establishes interaction as the basis for future progress
The TREAT-NMD/NIH International Conference is now successfully behind us, and we’d like to thank everyone who worked so hard to... MORE >
TACT kick-off meeting develops strategy for unbiased drug candidate appraisal
The TREAT-NMD secretariat welcomed the members of the core committee of TACT (the TREAT-NMD advisory committee for therapeutics) to Newcastle... MORE >
TREAT-NMD, EMEA and Patient Group Workshop on Antisense Oligonucleotide Therapies in DMD Signals Collaborative Approach to the Issues of Personalized Medicine
Download a PDF version of this press release here. On 25 September 2009 a broad group of 98 DMD experts assembled... MORE >
TREAT-NMD / Santhera Pharmaceuticals Press Release
TREAT-NMD announces that it has agreed to collaborate in providing professional physiotherapist training for Santhera Pharmaceutical’s pivotal Phase III study... MORE >
7th International Myotonic Dystrophy Consortium meeting highlights science with translational potential
Report by Benedikt Schoser, Munich The International Myotonic Dystrophy Consortium (IDMC) hosts conferences every two years focusing on the latest developments... MORE >
Wanted: DMD preclinical researchers’ feedback
Anyone involved in preclinical research using animal models for Duchenne muscular dystrophy is invited to complete a short research study... MORE >
ROM Enhancements
The Registry of Outcome Measures has been undergoing upgrades to support and facilitate comparison and review of outcome measures. Two... MORE >
PRESS RELEASE: TREAT-NMD and Prosensa collaborate on planning PRO-051 clinical trial
Prosensa, the Dutch based biopharmaceutical company focusing on RNA modulating therapeutics, announces the successful completion of a feasibility enquiry using... MORE >
TREAT-NMD and CINRG sign collaborative agreement
TREAT-NMD and the Cooperative International Neuromuscular Research Group (CINRG) have signed a Memorandum of Understanding (MoU) that defines how we... MORE >
