DMD patient registry in the UK

The UK Duchenne registry is located at www.dmdregistry.org where parents and those living with Duchenne can register online. The DMD Registry is governed by the UK charity Action Duchenne (www.actionduchenne.org).

Angela Stringer is the DMD Registry Curator and she can be contacted at angela@actionduchenne.org or by calling +44 (0)208 5569955.