SMA registry - Brazil

SMA registry - Brazil

DMD/BMD and SMA patient registries are being planned in Brazil.

The first holder and sponsoring organisation of the registries will be Sao Paulo University, Department of Child Neurology, Sao Paulo City. The registries are supported by the patient organisation AADM (Association of Muscular Dystrophy Patients, Families and Friends), from Ribeirao Preto City, Sao Paulo State.

Prof. Arnaldo Jose Godoy and Dr. Maria Bernadete Dutra Resende (both from Sao Paulo University) will be the first registry PIs.

The Brazilian registries will be a combination of a self-report and professional-report registry.
Anyone interested (patient, relative or friend) in registering, please contact Prof. Godoy for further information.

Banco de Dados Doença Neuromuscular
The Federal University of Rio de Janeiro
Rua Bruno Lobo 50
Cidade Universitária
Rio De Janeiro, RJ

Email or

Call +5521998596900