DMD registry - Czech Republic

DMD registry - Czech Republic

The Czech and Slovak patient registry for Duchenne/Becker Muscular Dystrophy is located at the Masaryk University in Brno, where it was developed by the Institute of Biostatistics and Analyses, and is sponsored by the Czech Duchenne Parent Project. You can find the registry at http://dystrophy.registry.cz.

The investigator in charge is Petr Vondracek, MD, Ph.D. If you have any questions or wish to be registered, you can contact the registry at pvondracek@fnbrno.cz, brabec@iba.muni.cz, or helpdesk@iba.muni.cz.

Web: http://dystrophy.registry.cz
E-mail: helpdesk@iba.muni.cz

Phone: + 420 549 498 281
Fax: +420 549 492 855

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Český a slovenský národní registr pacientů s Duchenneovou/Beckerovou svalovou dystrofií se nachází na půdě Masarykovy univerzity v Brně. Registr je vytvářen Institutem biostatistiky a analýz Masarykovy univerzity a je sponzorován českým Parent Projectem. Registr je mo.

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Characterization of the DMD/BMD patient population in Czech Republic