DMD registry - United States of America

DMD registry - United States of America

There are two patient registries in the USA for patients with DMD. The DuchenneConnect Patient Registry, managed by Parent Project Muscular Dystrophy (PPMD) and the United Dystrophinopathy Project (UDP).

The DuchenneConnect Patient Registry for the USA is managed and supported by Parent Project Muscular Dystrophy United States. The website provides information on genetic testing, clinical trials, and access to related services. To register as a member of DuchenneConnect or to contact a DuchenneConnect Coordinator, visit www.duchenneconnect.org.

El registro de pacientes de DuchenneConnect de los Estados Unidos es administrado por el Departamento de Genética Humana de la Universidad de Emory y patrocinado por el Parent Project Muscular Dystrophy de los Estados Unidos. Este portal de la Internet dará información de exámenes genéticos, estudios clínicos, y acceso a servicios relacionados al mismo. Para registrarte como miembro de DuchenneConnect or para contactar a un coordinador de DuchenneConnect, visítanos en www.duchenneconnect.org.

Click here to Register with the DuchenneConnect patient registry

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The United Dystrophinopathy Project is managed by Dr Kevin Flanigan and is based at the Nationwide Children's Hospital, Ohio. For further information please contact Dr Flanigan.

Address
DuchenneConnect
Parent Project Muscular Dystrophy
401 Hackensack Avenue
9th Floor
Hackensack, NJ
7601
United States of America

Email