DM1 registry - United Kingdom

DM1 registry - United Kingdom

As part of the international TREAT-NMD initiative, a national registry for all UK DM1 patients has been established in collaboration between the expert clinical centres, the MDUK and the Myotonic Dystrophy Support Group.

The UK Myotonic Dystrophy Patient Registry is being run from Newcastle University by Prof Hanns Lochm├╝ller. The primary goals of the Registry are to facilitate clinical research in Myotonic dystrophy and to allow clinicians and researchers to better understand the condition.

For more information see www.dm-registry.org/uk or contact the Registry Curator for further details.

An information leaflet has been produced and can be downloaded here.