FSHD registry - New Zealand

The NZ Neuromuscular Disease Registry covers all neuromuscular conditions including Duchenne and Becker muscular dystrophies (DMD and BMD), spinal muscular atrophy (SMA), myotonic dystrophy (DM), Charcot-Marie-Tooth disease (CMT) and facioscapulohumeral muscular dystrophy (FSHD).

Please contact registry curator Miriam Rodrigues or visit the registry website for further details.

Address
NZ Neuromuscular Disease Registry
PO Box 16238
Sandringham 
Auckland
New Zealand


Website www.nmdregistry.co.nz