Chinese SMA Patient Registry

Chinese SMA Patient Registry

Meier Advocacy & Support Center for SMA, founded in January 2016, is the first non-profit organization in China, solely dedicated to supporting SMA families throughnetwork, information, and services. Families of SMA China is its predecessor.

The Chinese SMA Patient Registry is sponsored and maintained by Meier Advocacy & Support Center for SMA.


It collects clinical and genetic information of individuals affected by Spinal Muscular Atrophy to promote clinical trials in China.
Meier Advocacy & Support Center for SMAWeb: www.meier.org.cn; www.fsmachina.orgTel: +86 4006060749 Email: martin@meier.org.cn

Email

Website www.fsmachina.org