Registry of outcome measures

Live and On-line Now!

The online TREAT-NMD Registry of Outcome Measures (ROM) and its associated tools are designed to give guidance, information and assistance to all professionals seeking details of outcome measures, including international collaborative teams of reviewers undertaking the crucial task of choosing the right outcome measures for neuromuscular disease trials, and to avoid duplication of this effort. The searchable registry contains information about outcome measures, including a description, details of validation, availability, contact details for providers, and references to related documents including manuals and training videos. Review teams can record OMs by category as being considered for a specific study or trial and benefit from seeing the OM choices being considered by other review teams. A manual gives advice on how to assess and select OMs.

The database is live and on-line now at www.researchrom.com