Care and trial site registry

Map of Germany showing sites and patients

The TREAT-NMD Care and Trial Sites Registry (CTSR) is a database of clinical sites and medical centres set up by the TREAT-NMD Clinical Trial Coordination Centre (CTCC) to provide a valuable and accurate source of information regarding the experience, facilities, equipment and personnel of sites worldwide caring for neuromuscular patients. The primary focus of the database is on collecting information that will enable the selection of sites with the expertise to take part in clinical trials.

The CTSR contains data on over 190 registered sites in 41 countries worldwide.

Based on the information in the registry we can identify potential trial sites for any given study population. Data reports generated from the registry can be presented in detailed excel spreadsheets, PDF reports, charts or maps.

For data protection reasons we do not freely distribute the contact information or feasibility data of the registered sites without prior consent. If you are interested in locating potential trial sites we would encourage you to contact us so we can discuss your exact requirements and provide information on all sites meeting your criteria.

PIs from institutions that would be interested in hosting potential future clinical trials for NMDs or have a population of neuromuscular patients that would benefit from TREAT-NMD's care standards information can sign up using the following link.

Click here to sign up / login to the CTSR

If you as a patient are looking for a care site in your country, please contact us and we will see if a centre in your country is registered within the CTSR. However, we do not make a quality control of the information reported by the sites.